Dry mouth,swollen tongue and burning lips!!!!!

[si-simary]

Does anyone have these symptoms? I take C/L 25/100 every 3 hrs and my dr says these symptoms are not side effects of C/L. I have been tolerating these problems for 3 yrs now. If I'm allergic, can't figure it out

[Hikoi]

I did a google search on burning mouth and PD. This came up first, is it any help?

webstercare.com.au/files/co...

[HeartSong]

I sometimes have sudden dry mouth and burning tongue. I've noticed it happening only when the outdoor pollen or mold counts are high (which is happening now in many areas.) So, mine could be due to allergies. Or, mine could also be due to acid reflux, which happens to me mostly when, again, the outdoor pollen or mold counts are high.

Have you tried taking vitamin C? It's helpful for allergies, and some sources say that it may be helpful for PD, too.

[Michael1953 in reply to HeartSong]

Same happened to me. Tried everything possible. No success. Then, one day it just disappeared! I hope your "one day" is soon. While waiting...keep trying. What did not work for me, may work for you.

[honeycombe3]

Hikoi, thanks yet again for an informative reference.

Having experienced this myself along with some other regulars on the site I can only offer a hypothesis as to its cause.

Si-simary do you take Sinemet or a generic C/L tablet? I ask because I had been taking Sinemet for a few years with no adverse side-effects. For some reason this got changed on one prescription to generic C/L. The description of your mouth & lips arose immediately & stopped when I reverted to Sinemet. After many tests it was decided that I was allergic to the coating on the generic C/L (a sort of pale egg yolk colour). Just a long-shot but it may be worth a change - tablets contain binding agents, bulking agents, chemical buffers & many more substances than just the drug itself.

[McPam in reply to honeycombe3]

some anxiety drugs can cause dry mouth after taking them fir awhile...I have been on zoo loft for over 2 years and now have dry mouth. Do maybe your meds may be causing it.

[si-simary in reply to honeycombe3]

Honeycomb3----Thankyou for replying. Interesting,because a few yrs ago,I was taking C/L manufactured by Teva. I was allergic to the yellow dye. As

Soon as I switched manufacturers ,all my symptoms went away. I guess I better have a talk with my pharmacist. Is Sinemet a lot more expensive than

C/L?

[honeycombe3 in reply to si-simary]

I believe Sinemet is more expensive but as I am from UK I don't know the prices.

[ancee]

My husband cannot use any generic CLD except the ones made by TEVA or MYLAN. Any others give him itching, etc. Something to think about.

[park_bear]

Yes, your doc is correct not from C/L.

It is the disease itself - PD dries out the GI tract from one end to the other. When your mouth, and particularly tongue, is no longer adequately bathed in saliva this is the result. I take Cevimeline which prompts the saliva flow. Pilocarpine does likewise. I also have a collection of mouth moisturizers, and keep a hard candy lozenge in my mouth.

[si-simary in reply to park_bear]

Thanks, park_bear, I'll try these suggestions. My dry mouth is so bad, I'll try anything.

[park_bear in reply to si-simary]

I should add that the two meds I mentioned are by prescription. If you get resistance from the docs tell them other PD patients have benefited

[Hikoi in reply to si-simary]

I wonder was there anything useful in the article I posted si-simary?

[si-simary in reply to Hikoi]

Problems with my computer. So sorry! Would you mind sending it again.I continue having problems with swollen lips & tingly tongue., along with dry mouth(like eating cotton balls.) This happens every night. I seem to think I'm allergic to C/L. However, these appear at odd times, not just after taking C/L.

[Hikoi]

webstercare.com.au/files/co...

Try clicking on this link

[si-simary in reply to Hikoi]

Thanks, Hikoi. That is a very interesting article. A lot of it pertains to me,so

I'll be discussing it with my Dr. Thanks again.

[gdublu]

When I was 1 st diag/treated ,I was given Ropinarol(NZ) name..and had my tongue stiking to my top gum.through shifting to a different hospital area,my new neurol.,took me off them ,due to side effects, that dry tongue thing went away too.so.i don't think it is the Sinemet C/L tabs

[Challenged1]

Hi. I was diagnosed 2 months ago but for 18 months I have been dealing with a swollen tongue. I had a tongue biopsy and nothing found, but convinced it is linked to PD now. Sometimes it feels so large I want to stick my tongue out. I don’t have a dry mouth and in fact drool a little, especially at night and just wondered if anyone else had this with PD or if it could be from some other condition?