40 years and counting ......

[Bionicmatt]

Hi everyone ! I am new here but i am not new to Parkinson's disease having developed symptoms aged eight and started on Sinemet 110mg shortly afterwards. I am now entering my 41st year with PD so I have plenty of experience !

[Serenity_finaly-1]

"8!!!!" age **8 : 8 years old? Human years ? 8 ?!!! I spent 2 years getting a final diagnoses because I was 44. Eight this is a story I need to hear more about.

[Bionicmatt in reply to Serenity_finaly-1]

independent.co.uk/life-styl...

[Mikehere in reply to Bionicmatt]

Well said.

[Bionicmatt in reply to Serenity_finaly-1]

I guess I am lucky as i cannot really remember life being any different !

[trishtheteacher]

Wow! You're my hero!

[Bionicmatt in reply to trishtheteacher]

Thanks! 😁

[Hikoi]

your positvity is inspiring.

[Bionicmatt in reply to Hikoi]

Thank you . My smile is genuine but it helps that I surround myself with positive people.

[Bazillion]

How humbling to meet you! I'm 68 ,diagnosed 4 and a half years.

Having Parkinsons is an inconvienience for me but I am not living with PD, it's living with me.

Living life on the slow train now still doing everything but just takes a little longer!

[Bionicmatt in reply to Bazillion]

I agree , I manage to do most things I attempt sometimes a little slowly ...but I get there in the end !

[Juliachq]

What progressed you to brain stimulation?

[Bionicmatt in reply to Juliachq]

Hi Julia ,

My consultant suggested the outcome of surgery would improve my ability to control the ups and downs of my Parkinson's - I'd had PD for 30 years by then and trusted my consultants advice implicitly - I don't regret it

[TheresaCurley]

Holly Mackerel....God Bless you! I can't imagine dealing with this an entire life time.

[Bionicmatt in reply to TheresaCurley]

Hi Theresa ,

Thank you ! I cannot imagine it either ...that's why i dont . I enjoy each day and take up the challenges as they appear .

[Carolinagirl123]

I got my official diagnosis in May 2014, but looking back I know I had it much longer!!

How do you do it? Do you ever get depressed? Are you married? I am amazed at how great you look! Happy Thanksgiving to you!!

[Beckey]

Hi Matt, and a warm welcome. You sure have a bionic smile! This group is terrific -- I've found it to be a wealth of wisdom, information, support, kinship, and yes, even wit, and I hope you will too.

[Bionicmatt in reply to Beckey]

Thanks Beckey ! I am hoping i will be able to help others by sharing my own story

[ramondo4]

What a wonderful story of courage and perseverance,

that should inspire many PD sufferers, from a fellow

Brit.

[niecy64]

Hi There thats young what was your first symptom. And from your photo you look to be doing ok. I've had PD for 11 years now. I take Simenet 125mg 7 a day.

Bye for now: Niecy

[niecy64 in reply to niecy64]

Hi me again I FIRST noticed it on holiday my big toe would twitch then it went in to my leg then a year later my arm. So visited the doctors had an MRI and that was that. But I have also started with dystonia in my feet at times it is very painful. Any way enough about me

Bye for now

NIECY64

[Bionicmatt in reply to niecy64]

Hi I started with a loss of balance where my legs seemed to collapse at the knees and i couldnt stand up straight I also had a dystonic pain in my shoulder . I also used to walk on my tiptoes with one foot having a spascity which made it turn in ( most uncomfortable )

[ramondo4 in reply to Bionicmatt]

Have you found any medication that helps loss of balance, sinemet.does not help me with

that problem.

[niecy64 in reply to Bionicmatt]

Hi yes i know what you mean aboutyour foot mine does that but it turns out at the ankle and down, Doctor thinks i'm unusual because they normally turn in. I have had botox injections in my leg in four places so far so good.

[Opt8]

You're encouragement for many. What type of exercise do you do?

[Bionicmatt]

hi, I try and get out and about as much as i can and engage with lots of different people . I guess that's mental exercise as much as anything but regarding physical exercise ....when i am off and struggling to stand the effort in doing that several times a day keeps me reasonably fit i guess