I have no Tremor but suffer from extreme left foot pain, dyskinesia in my left leg & contestant freezing gait so bad it is impossible to go out on my own
Does anyone else have pd only on one side?
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Maxkas
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Oh yes, that is the way PD usually manifests. There are resources out there to help overcome the freezing. Some are mentioned in this book, which is an excellent overall reference by a PD sufferer and journalist: amazon.com/gp/product/03741...
I am right handed. My left bad parkie side hand is way bigger than my right one, I don't remember being like that years ago. I'm starting to have like a frozen shoulder on my left side it hurts.
Despite losing 30 pounds over the past 2-1/2 yrs, my left hand also seems larger than my right. I can't move my wedding ring even to the first joint past the knuckle. Fortunately, I like my wedding band.
I gather that this happens because I don't use that left hand as much. And that is part and parcel of PDs insidious circle. For instance as I'm tapping this out with my right hand, my left is motionless. That's cos if I were to try to type with both hands, experience tells me my left has a one in two chance of hitting the correct keys. Bcause it doesn't get enough practice. Because cleaning up typoes then takes too long....
Two suggestions to overcome that big left hand issue:
One: make a concerted point of flexing that left hand and fingers. Exercise that southpaw. And two: wear a compression glove. The kind lymphedema patients would wear. That's helped a lot.
Compression glove is an interesting concept. I have not been able to wear my rings for a long time I did buy something way bigger. To accommodate the bigger size of my fingers.
Each Parkinson patient has experienced different results taking CL, here is mine :
Diagnosed 5 years ago , even though resisting taking medication, I got convinced by Drs and family members that it would improve quality of life! I started then LD and it was increased to 8 a days as PD progressed but it never removed all disorders, and mostly on my let side also and no tremors!
For my first time, I have participated in a Clinical Research “Neurodegeneration and Brain Function in Aging with Parkinson Disease” . On 8/18 an MRI was taken while OFF medications since 6 pm the day before - 1st time on No medication since diagnostic - in the morning I had many times Dystonia, freezing, needed my husband help for me to get ready...To our astonishment after noon I was able to get off the car by myself and then to walk on to the registration desk , perform many movement tests, take the bus, first golf cart ride , MRI etc ...with no problems , was fine and surprised from the positif result !!
Since then with my Neurologist help , I gradually reduced CL, I am now on 4 instead of 8 and feeling well, more energy, less apathy , no more freezing!!!!
EXERCISES is my theory : weekly 5 hrs regular walk + 2 hrs Yoga class + 3 hrs exercises for PD class + I have started to follow John’s advice I am on 3 x 10’ fast walk a week !!! Here is his link:
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