PD, PAIN, MEDS & WHO KNOWS WHAT?

[honeycombe3]

Hi there everyone,

I feel moved to write of my very recent experiences in the world of PD & other health issues. Many of you will know that I have been suffering severe pain for around a month in my affected left side - especially my arm. I couldn't get comfortable except when lying down & have been 'bouncing off the walls' according to my husband. The tremors have been very pronounced, I couldn't think straight & had spells of talking gibberish (nothing new there) & also I started having frequent & longer spells of freezing. I rang my PD nurse who suggested I try the Apo-Go Challenge for freezing as this was causing me danger as well as concern. She got me an extra visit with my consultant who, after listening to me & my husband, persuaded me to try a short spell on increased Sinemet prior to the Challenge which I did.

Last Thursday I was alone at home & had to call for an ambulance as I thought I was a having a heart attack (1st one 15th June 11). The paramedics tested me & were fairly sure I wasn't but took me to A&E to get a thorough check, thank God!! Everyone was superb & after a battery of tests it was discovered that my severe left-side pain was actually angina not just PD. Now that this being treated I am on the mend & felt up to writing this - partly to share but mostly as a cautionary tale. My consultant is a gerontologist who also supervised my heart attack treatment not 2 yrs ago yet he never queried the symptoms presumably because my PD is still left side only.

If anyone finds themselves in a similar situation PLEASE flag up with your GP as soon as you can that it might NOT be PD. I'm still sleeping 5 or 6 times during the day & now also sleeping at night!! So all's well.....

[landman]

I like what you had to say. Loved your bio. You will enjoy this site. fightingparkinsonsdrugfree.com

[shasha]

dear angela ,

i am so concerned at your terrible treatment but also relieved that you are now dxd and ok - i must say that i had not seen you on the blogs for a while so was wondering about you ...

much love to you

shasha

[Joanne_Joyce]

So glad the heart issue has finally been identified and you are feeling better. Thanks for sharing your experience.

[Dennis]

Glad to hear this positive report. ~~Dennis

[honeycombe3]

Hi my lovely friend Sharon (& others who commented),

I haven't had terrible treatment - just flagging up that it's so easy to get into the PD rut even when your consultant treats you for more than 1 condition. It never entered my head that my symptoms were anything else because my life has become focussed around PD. So come on folks.....ideas for broadening my (our) health horizons & put PD in its place!!!!