Anyone out there drugs free?: - Cure Parkinson's
Anyone out there drugs free?
this is an interesting question. I for one would like to know. I assume that anyone with PD is on at least one Med.
I do not take any drugs for Parkinson's. The only drugs I take are natural thyroid and a diuretic. Normally I do not take any prescription drugs, but I suffer from terrible water retention which also drives up my blood pressure so I really have to take the diuretic. I am put off by reading all the posts on this message board about the nightmare prescription drugs that people are taking for Parkinson's. In my opinion, what is wrong with many of them is the drugs they are taking. If you Google the drugs people are taking you can see the side effects for yourself. I do not understand why people take these drugs. Personally, I got the idea from John Pepper's book, and there are others out there too, that the best course of treatment is aerobic exercise, a healthy diet and NO drugs. I also take CoQ10 which is not a prescription drug and believed, with some evidence to prove it, to help with Parkinson's. Parkinson's is an incurable, chronic condition which none of these nightmare drugs are going to cure anyway, so what is the point of taking them? It only enriches our profit-driven medical industry.
Idq
as you say it is a progressive disease or I think it is a number of conditions each affecting the same area of the brain which is why we are all similar but different. How long have you been diagnosed, i think that it is interesting to know if people can stay drug free.
Idq1997
I am pleased that you are managing to do without PD drugs, but is it possible that your regime will not control some of the symptoms people have. My most irritating symptom is a pronounced tremor; are you sure that your regime can deal with this? How much CoQ10 do you take daily? I recall that this nutrient is rather expensive in therapeutic doses and might be out of some PwP pocket range. Also, what do you mean exactly by eating a 'healthy diet'?
Norton
My neurologist informed me that not all Parkinson's patients have a tremor and that not everyone who has a tremor has Parkinson's. I do not have a tremor. I am fortunate. I take 1200 mg of CoQ10 daily. It is expensive. My "healthy diet" is a low carbohydrate diet. I try to eat no sugar (sometimes this is not entirely successful because I love sweets) and no grains.
Thank you idq1997. It is an interesting comment by your neurologist, but not helpful if you are one of the 25% misdiagnosed as having PD or some other condition. Essential tremor being just one of the 'other conditions'. As for the CoQ10, I live in the UK and 1200mg a day and the cost for such a dose would be virtually prohibitive. In respect of the low carb diet, what other macronutrients do you eat? For instance, how much fat and protein in relation to each other? Whilst perhaps not desirable, there are no essential carbohydrates, unlike amino acids (from meat/fish and the like) and fat. What is your take on this?
Norton
For the most part, I don't eat meat because I like animals. I am a great consumer of plain old unflavored yogurt made from unhomogenized milk, from cow's milk, goat's milk and sheep's milk. I also eat plenty of cheese and eggs. I am sure I get plenty of protein without meat. Insofar as fat is concerned, I believe that the whole Cholesterol Terror is a great fraud perpetrated by Big Pharma to sell statin drugs I am following with great interest a developing theory that Alzheimer's is caused by low fat diets. The brain and nervous system are composed chiefly of fat and cholesterol so this makes sense. Of course commercially altered fats such as vegetable fats (margerine) and homogenized fats are killers. But healthy fats are good for you, in my opinion. For instance, lard is much healthier than Crisco. I am 80 years old and never had any cardiovascular problems, although my total cholesterol regularly pushes 300. My triglicerides are around 100 and my LDL in the low 80s because I exercise a lot. So I don't believe in cholesterol and just try to restrict my fats to healthy ones. The reason why I have Parkinson's is brain damage suffered in a car accident in 1962 which caiused me to be paralyzed on one side. I thought I had recovered completely but in my old age began to develop problems with my balance, walking, swallowing and a few other things.
Thank you idq1997 for your comprehensive reply. Not being an expert on nutrition I sometimes despair at the polar opposite opinions of some 'experts' who write about this subject on the Internet. I do have a couple of further points I would like to ask. have you looked at tour vitamin B12 levels owing to being vegetarian? also, there are several people claiming that eating dairy is implicated in the onset of Parkinson's? Lastly, you say that you eat a low carbohydrate diet, may I ask how many carbs do yo limit yourself to daily? By the way, I also eat a high fat diet (mostly cheese).
Thank you again.
Norton
I am aware that many people bad mouth dairy, but having suffered serious brain damage in a car accident appears to be the origin of my Parkinson's without having to argue about dairy. I think when most people talk about dairy nowadays, they are referring to the homogenized, pasteurized slop which is unfit for consumption in my opinion.
Even while they bad-mouth milk, people are now raving about the miraculous benefits of whey. If milk is "dairy", surely whey is also "dairy".
I do not limit myself to any specific number of carbohydrates. I am sure I get plenty (maybe too much) in the fruit , vegetables and yogurt that I eat. I simply try to avoid all grains and sugar as far as I can. With respect to vitamin B-12, I believe that milk as in yogurt and cheese is a good source of vitamin V-12. I do not believe that lacto-ovo vegetarians have anything to worry about with respect to Vit. B-12.
lately I have been getting "off" symptoms every 2 hours which made me think that the L-Tyrosine and Macuna non drug protocol was no longer working. So tried Sinemet but besides the nausea, it really felt like it made my symptoms worse with Off times. couldn't handle the nausea to continue experimenting. Returned to non drug approach. Was hoping that adding the drug for treatment would solve this worsening. IF I no longer can get the amino acids to w ork I would hope that I could minimize the amount of drugs needed taking both.
I was diagnosed 3 yrs ago but I started symptoms 5 yrs before that.
I also have a bad tremor in my right arm & my right leg. I take 3 x 400 mg of CoQ10 which I buy from America through eBay, they cost £57 for 600 x 400 mg capsules + postage. I also take dl-phenylalanine. Whilst these are working for me I am not for one moment recommending them for anyone else. I just am not ready yet to take prescribed meds. I am not suggesting that is the best route either it's just what I do.
Cassy52
Thank you for replying in this thread. Are you saying that he CoQ10 and phenylananine tablets actually control / eliminate your tremor without any Parkinson's allopathic medications at all? If so, it is worth a try even if not guaranteed to work, that is the risk I am prepared to take! May I ask where you get the phenylananine tablts from and the cost and dosage? How long does each dose last before you have to take another dose?
Do you follow any particular dietary regime in addition to supplement the nutrients?
Thank you again.
Norton
I buy dl-phenylalanine from Holland & Barrett & I take 3 x 500 mg per day, I must emphasise that these tablets may not be suitable & certainly if you are on prescribed meds please speak with your Doc. Since diagnosis I have increased the tabs slowly & have have been roughly the same for the last 3 yrs but whether that is me & my PD or down to the tabs I don't know. I eat & drink what I want to.
Cassy52
Thank you for your reply to my further questions. Judging my own experience these past three years, It appears that my symptoms may have deteriorated compared with yours. There might well be something in your approach to treating your PD symptoms.
Thank you again.
Norton
Norton, I fast walk 2 miles on a treadmill most days & I really think that helps, certainly with stress.
Casey
i have been diagnosed 5 years but clear symptoms 13 years and vague symptoms about 20 years. We will all have different experiences and notice different symptoms . The only standard i can think of is time of diagnosis. Its difficult to get a sense of how well people are doing without knowing that. someones experience 2or 3 years on is quite different from someone 10 or 12 years on, it would be interesting to know about if anyone is drug free after 10 years for instance.
Agree
That is a heartening story of yours which may inspire others to consider a nutritional approach and after being on allopathic medication for a long time.. Thank you for sharing it with us.
Norton
Thank you Norton, I forgot to mention I also added cocoanut oil daily 8 T. a day, mixed in with his oatmeal and meals. When my husband went off his meds along with doing the other alternatives I started giving him Super Thisilyn to help detox his liver. I later took him to a new Doctor whom was in agreement to my taking him off the pd meds. At my request to check Jack's
Vit D 3, his was very low. He also checked Tetosterone level, it too was very low, Doctor said low Tetosterone can make one feel real tired, he had injections every 14 days, his weakness and being tired has seized, not getting injections any longer.
Thank you Prayingfooracure. My, you are trying very hard to improve your husbands situation and I commend you for sharing it with us here.
Norton
For what it is worth, here is what a University of Maryland website says about phenylalanine: "One animal study suggests that D-phenylalanine may improve rigidity, walking disabilities, speech difficulties, and depression associated with Parkinson's disease. However, there is no evidence yet whether it would have the same effect in humans. More research is needed."
Source: Phenylalanine | University of Maryland Medical Center umm.edu/health/medical/altm...
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I take dl-phenylalanine & it is very good for me, however I take more than the daily recommended dosage & obviously I am not sure what damage it is doing, if any to other organs. Thank you for letting me have the information that you have.
Since you are taking CoQ10 make sure it is Ubiquinol, this is a more absorbent form. Curcumin is also another supplement that I have been told helps PD. I get my supplements from a company called Life Extension. Their prices are better that the health food stores, I also order blood testing from them because it is less expensive that my insurance co-pays. They have doctors on call that you can talk to, and have a protocol that recommends what supplements are found to help PD. They have helped me a lot. The phone number is 800-544-4440. I don't get any type of monetary reward for telling you about them. The Life Extension Foundation has helped me alot, and saved me a lot of money so I wanted to pass it on.,
Yes! I have been off any Pd medication since 2003. I was diagnosed in 1992 and put onto selegiline, which I took until 2003. Because I walk for one hour, three times a week and cover up to five miles in that hour, I have been able to reverse my symptoms. I still have Pd, but am able to keep it at a level where I am able to enjoy a good quality of life. I am nearly 79 and regard myself as being healthy.
Casey
I tried and all PD symptoms came back with a vengeance possibly a persons different body chemistry but AS SOON as I resumed the medication in about two days the symptoms abated and the tremors were under control and my balance progress resumed.
I tried but the meds were really needed for ME to function and not fall around and stumble and keep working. As I said , body chemistry reacts differently and I found how mine responds to my medication and I need it.
I am so pleased you are feeling better again. As you say we are all different & respond to medication differently. At the moment I prefer to be med free but who knows what the future will bring. Like John Pepper I do take exercise, which seems to keep me reasonably healthy, I walk as often as I can.
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