Anyone out there from Canada? or from Newfoundland?

[Alleymay1957]

[lethe]

Yessireee...

I live in T.O. (and my mother is from The Rock). And You?

[Alleymay1957 in reply to lethe]

Hi there,

I live in Mount Pearl, Newfoundland. Diagnoised with PD at 40. Been fighting it for 17 years now.

[quirkyme in reply to Alleymay1957]

so you are young onset with PD. In the US we have young onset groups, since the needs of YOs are often different than people like my husband who got it in his early 60s.

[quirkyme in reply to lethe]

the World Parkinson's Disease Conference for 2013 was in Montreal. This year it's in Portland, Oregon. worldpdcoalition.org/

[Adele_D in reply to quirkyme]

Hi, WPC Portland is in 2016. Lots of time to plan!

[quirkyme in reply to Adele_D]

thanks, for correcting my year, that it's in 2016. Hope you meet lots of PwPD there. Not that there's 'so many' but that you get to meet others.

[Alleymay1957 in reply to quirkyme]

yes I attended this conference in Montreal, it was the most interesting sessions ever!

[quirkyme in reply to lethe]

where is T.O.?

My paternal grand-mother came from St. John Newfoundland.

[Adele_D in reply to quirkyme]

T.O. is "Canadian" for Toronto, Ontario.

[quirkyme in reply to Adele_D]

thank you for letting me know.

[Alleymay1957 in reply to quirkyme]

Oh Really!!!

[quirkyme in reply to Alleymay1957]

my brother has been up to NF but I haven't been up there....yet.

[Annie11]

I am from Alberta

[gurdeep11]

i m from bc been trying to connect someone from bc or canada at least

[Casper3564 in reply to gurdeep11]

I'm from Edmonton, been diagnosed since jan 6 of this year. It has been a very mentally draining experience. I'm not sure when to go to the doctor with whatever ails me. Is it pd or something else.

Where abouts in bc, I was in penticton last week,

Dave

[Alleymay1957 in reply to Casper3564]

Did a neurologist diagnoise you with pd? At first it's hard, your kind of in denial. But you've only been diagnoised since January. It's still very fresh. It's very easy to go into depression but we have to fight that one the best way we can I've had pd for 17 years now ad I'm not about to give in to it. For me the name of the game is staying active, eating properly, taking meds on time, and music, playing and listening. keep on the go, sitting for long periods of time is not good for you. Are you slow moving or are you moving a lot.

Maybe you need to start a low dose of sinimet. I've been on it for 17 years. couldn't function without it.

All the best to you now!

Take Care

[Casper3564 in reply to Alleymay1957]

Hi, yes a neurologist diagnosed me. So far I'm not depressed but feel a little down now and then. My right side is stiff and I used to use a excersising machine but my right leg is sore and I'm not sure if it's because of parkinsins or something else. How does one know? I just had carpel tunnel surgery on Tuesday so I'm gonna wait till i heal then go back to my family doctor and ask about my leg. I'm still working as I am only 50 years old. My wife keeps making me go for walks which is good but I have a wicked limp with my right leg being very sore. I used to take pramipexole but didn't like the side effect and feel it wasn't doing anything for me, so for now I'm taking nothing. I have a great support group ( family )

I like to be active but I am finding it very hard. This October when it is gets colder I'm gonna try yoga.

Thanks for the reply

Dave

[Hoagy]

I am from Thorold Ontario next door to St. Catharines and Niagara Falls. I have Cortical Basal Ganglionic Degeneration. I was diagnosed this past March after being sick for a few years. I gather you live in Newfoundland known to us in Ontario as Canada's most beautiful island. I am a 56 year old married male of 3 kids and 6 grand children. My left foot and hand are turned in and over and I where a brace on my foot. My right foot is starting to turn in now. I use a walker or forearm crutches to get around. I been told I will keep getting worst and will end up in a wheel chair. I am still able to drive but I need to be tested every 6 months to make sure it is safe. Three years ago I ended up with hydrocephalus and in 2013 I had brain surgery to fix that. I never got back to my old self and we thought it had something to do with the surgery, but further investigation we were told that CBGD is the problem. Feel free to contact me at any time to have some discussions.

[Adele_D]

I am from Grand Forks, BC, small town, very beautiful, quite isolated, in south central BC. I am 62, diagnosed at 59, retired Kindergarten teacher and married 35 years to a lovely man for whom I am now the carepartner...he has young onset Alzheimers's. I walk with one hand in sorrow and one in joy. There is much to mourn and even more to celebrate. Exercise, friends, family and laughter sustain us both. In the summer my garden is my sanctuary and in the winter I write and write and write. Our growing tribe of grandkids is the light in our lives.

[gurdeep11]

Would anyone like to talk on phone about PD from bc or canada thanks