Trying to cope with the anxiety and pain caused by living with RA

Trying to cope with the anxiety and pain caused by living with RA

Hi my name is Janina and I am 31 years old, I've had RA since age 26 and I'm reaching out to others with the same disease to try to find some hope. I currently take enbrel 50mg once a week which has greatly reduced my symptoms. However I still struggle with flare ups and am scared of the side affects that come with biologics. Do many of take biologics? If so how long have you been on it and are there side affects? This disease makes me feel so defeated and the pain is unbearable at times. Is there any hope of a normal life?

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  • Hi I take Benepali 50mgs along with mtx 20mgs and don't get any side affects but still get problems and flares, I do drink gallons off water each week which I think allies any side effects

  • Yes, there is hope for a 'normal' life, Janina_637! πŸ€—

    Jenn is another young lady living with RA:

    Living with Rheumatoid Arthritis for 21+ Years [Personal Story]:


    Hopefully, Jenn will inspire & show you there are ways of coping with the anxiety & pain of life with RA & getting on with a 'normal' life. πŸ‘

    Wishing you the very best on your life-long journey, Janina. πŸ™ πŸ€ 🌺 🌞


  • Video description reads:

    "Published on Nov 6, 2014

    Living with Rheumatoid Arthritis Interview . . .


    In her personal story about living with rheumatoid arthritis, Jenn shares what its been like living with RA for the last 21 years – the good, the bad, the ugly – and specifically she shares about her daily battles with the disease and how she manages her arthritis pain most effectively.


    Krysti: Hi I’m Krysti and I’m here with Jenn. The reason for recording this audio-video is to share a real-life story about living with rheumatoid arthritis and what it means to be diagnosed with RA. We’ll talk about some of the struggles and the successes that happen with the disease, from a personal account.

    So the goal is to be able to chat with you Jenn and to talk a little bit about what it’s been like through your journey. That way people who are dealing with some of the same challenges can relate to your story and recognize that they’re not alone in their journey through this disease. . . .


    Transcript of interview:

    About RA Pain Management (Jenn & Krysti):

  • Thank you so much for taking the time to send this to me. It is very inspiring and literally made my day to watch this amazing video. I truly appreciate you ❀️

  • Very welcome, dear lady. πŸ™

    There's quite a few of us out here doing 'considerably better' -- even 'remarkably well', Janina! πŸ€— (Jenn is the 'tip of the iceberg'. πŸ˜ƒ )


    When you're ready to 'have your socks knocked off', have a look-see: FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers:


    If ever you're interested in researching, here's a couple jumping-off points:

    β€’ 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not):

    β€’ Dean Ornish, Neal Barnard, T. Colin Campbell, Caldwell Esselstyn, John McDougall, Michael Klaper, Michael Greger:


    (Kindly consider πŸ€” sharing with trusted loved ones πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘¦ -- as they're the folks who also need to truly understand & can help sustain you through the long journey πŸ›£.)


    πŸ™ πŸ€ 🌺 🌞


  • Hi Janina,

    There is always hope to live a normal live again. I was diagnosed in Jun 2014 and I am in remission since Aug 2016. In fact I was very much back to my normal life in Apr 2016, it took another few more months for my rheumy to declare that I was/am in remission. I would say that I am now pain free though I still feel a bit of stiffness on the joints of my fingers and toes when I move them.

    You need to read a lot to equip yourself with good knowledge to fight the disease. You need to be mentally positive to accept your own condition and fight on. Below was my own story that I intended to inspire RA patients to move on positively.

    During the peak of my suffering, I still continue the exercises that I could do to ensure my joints were flexible. Slowly I moved on to yoga until today.

    At the very beginning, I had a lot of questions in mind. Below 2 very informative and good videos which answered most of my questions that I like to share with you.

    Work closely with your rheumy, he or she is the best person to help you. If you have any doubt, do check with them.

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