Mercaptopurine

[CONSTANTGUTACHE]

White blood cells 3.4 taking me off mercaptopurine wonder how long I will be off them.and hope I don't have a flare up while I am off them have been in remission for 2 years.

[willow24 Administrator]

Hi, your WCC only slightly low so it shouldn't take long for your body to rectify this, however mercaptopurine can stay in the system for many weeks after stopping.

It is likely you will be started on another medication. Was it your GP who stopped it following blood tests? if so I would get hold of IBD nurse/gastro to let them know as a GP letter to them can take at least 2 weeks to get there

[CONSTANTGUTACHE in reply to willow24]

Yeah my gp did this. My gastro handed care to him and getting in touch with gastro is near impossible.

[willow24 Administrator in reply to CONSTANTGUTACHE]

Thats terrible, can you not get hold of the gastro secretary and say you need an appointment? without being disrespectful to your GP, you need following up by gastro as it is their area of expertise

[CONSTANTGUTACHE in reply to willow24]

Had a blood test.waiting for result.not long now will keep you up to date.

[willow24 Administrator in reply to CONSTANTGUTACHE]

fingers crossed x

[CONSTANTGUTACHE in reply to willow24]

Blood now 3.2 getting worse.gp suggests to take 50mg dose instead of 100mg and to contact gastro which I am doing today.will let you know outcome.no flare up yet thank God. The wait begins phoned gastro who suggests I phone ibd nurse now waiting for call back. stuck to the phone.

Gp told me to resume 50mg took one. ibd nurse said to stop them until 10th July to have blood test 9th they want my blood to be at least 3.5 .only one in the system shouldn't make any difference.

[CONSTANTGUTACHE in reply to CONSTANTGUTACHE]

Results were 3.6 another week without mercaptopurine. Then blood test .hopefully I can go back on my meds then.