Is this a sign I'm getting better

[Kathy6]

I've been waking up every morning with quite bad back ache, I've noticed that my stools are more solid and it is taking me longer to go like a little constipated, I'm still going about 3 times on a morning before the pain wares off a bit and then I try go back to sleep, not always successful. I have taken my third humira injection and I am hoping this is a sign of it starting to work.

[Kathy6]

My whole being is taken over by this illness, really need help, can't cope with it anymore. Don't think people understand what it is like to be me, feeling really sorry for myself help!

[willow24 Administrator]

It does take a few injections to notice benefits. The fact your stools are formed is a good sign, and that the inflammation has gone down. It will still hurt for a while whilst the ulcers heal, but hopefully not long now.

Hang in there, your not alone. big hugs xx

[Kathy6 in reply to willow24]

thank you, it is my mental health boe, I'm off work and can't think about anything else. I'm lashing out at everyone I love cos they don't understand what I'm going through!

[Fatima_sh in reply to Kathy6]

I know exactly how you feel Kathy, it’s hard having an invisible disease, but you have to know that you’re stronger than it ! Never give up, don’t let the disease control your life, and as for your loved ones ...it’s going to take time for them to understand, but don’t be discouraged because you have us in your side ! ♥️

[willow24 Administrator]

its really tough. Coz we have no obvious disability that can be seen it is hard for others to understand. Also it is normal to have these feelings and many people with life long illnesses have mental health issues at times. It does not mean your weak or a failure, it just means your human and dealing with a lot of stress alongside being ill xx

[Kathy6]

Yrs that's the problem. If I had a broken leg they can see it. I have always been the one that cared for others and can't understand why they can't do it for me, so I sm lashing out and I'm getting nowhere with it, can't believe how selfish people are.

[SORRELHIPPO]

We are entitled to have bad days, mental and physical, there is no fun being diagnosed with a chronic condition, as most people feel any illness can now be cured. My experience, not just for myself but also for patients I have worked with in the NHS is there is a "coming to terms with" period, and this can recur, when there are other changes along the way.

We do need to aknowledge that our nearest and dearest also have to go through these. I had been married for 18 months when Crohn's hit, and my husband had to suddenly get used to a wife who had to do a liquid steroid enema each night before sleep!! I am sure when he said for better or worse he never quite imagined an inco sheet in bed at night!! It did take me a little time before I realised it was nearly as bad for him as for me.

I do agree that because the problem is not visible, we are presumed to be making a fuss over nothing, a bit like people who are deaf, who tend to get treated as if they are stupid, because it is not visible. I certainly found out who my real friends were, I did give them some of the booklets from The Crohn's + Colitis Association to read, I found those who took the trouble to understand are still my support 30yrs on.

[Kathy6]

Yes this I'm finding hard coming to terms with it and to stop fighting it. I'm scared that I'm going to have to give up my job I'm hoping the injections will help and I will be able to carry on with my life, or I may have to make serious decision and that's what I sm fighting and there is no room in my life for anyone who can't be there and support me and understand what I'm going through.