COPD Friends
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Length of time

Just want to know how long have you all had Emphysema

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I was diagnosed 5 years 2 months ago. It was March 2013

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Hi Hun how are you doing now ? Nice to hear from you ?

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I'm doing. You know, not healing fast enough to suit me. How are you?

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Why are you ill st the moment ?

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You had surgery I believe

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You are correct, lost the upper right lobe to cancer 5 weeks ago today. Still have discomfort and swelling on that side, and get sob pretty easily.

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Really hope you heal quickly x

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I’m not really sure. I was diagnosed with NSCLC in 2009 so it was probably sometime around then, which would be around 9 years.

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And how are you now ?

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Great question Vonnie . I like you think it is beneficial to know how long folks have had it as well as what stage and speed of progression if any. I too get confused and am nosy to know how folks are feeling after years of COPD and how they manage and what tips they can share . I’m always interested but I’m afraid to ask someone such things as “ Are you Mild ,Moderate if so how how long have you remained in your present stage “ or how often do you exercise? Have you had COPD for 5 years ? 10 years ? 15 years ? 20 years ? Etc etc . Thanks Vonnie

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Well I thought if I don’t ask I just can’t get it out of my mind. Plus I met a lady today that was diagnosed at 42 and is now 78 and is still mild her advice was eat healthy, keep walking and stay away from ill people plus have fun. She honestly looked great

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That’s great but hear me out if it’s so true that generally if one has mild/moderate and the only treatment at that stage is absolute smoking cessation exercise, and healthy diet along with yearly flu jabs and possibly an inhaler then just tell the patient you have onset preliminary lung disease and you must quit smoking ASAP and diet exercise eat well etc. why burden the patient with a doom and gloom diagnosis assuming they aren’t sure of their prescribed treatment. For me it would have been great to quit smoking , feel better and go about my merry way without the specter of being constantly reminded of those four nasty letters COPD

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I agree I think more time on diagnosis is needed to explain things to us as I have not slept panic attacks and worry myself sick with it. I rang British Lung Foundation too and they agreed with the lady I spoke to also adding keep your legs strong and if you have hiatus hernia like I do treat the acid reflux as can cause chest infections too

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Keep up the good fight

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And you please I am following you now we can learn together best wishes

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That’s why I’m always curious to know the prognosis of folks with mild/ moderate to basically figure out if the treatment (as limited as it is ) is actually effective

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Just curious why this post is on COPD Friends link and not the BLF link I always think there are more responses there

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Sorry was not sure where to post it 🤭

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I was diagnosed in 2003

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May I ask how are you now 15 years on ?

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Went from mild to moderate and now between moderate and severe.

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Did you suffer a lot of infections ? Any other illnesses

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No thank goodness, no infections or pneumonia in the last couple of years! I do have osteroarthritis and fibromyalgia. My back is a mess even though I had surgery a couple of years ago.

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Don’t understand why some progress as you have done all the right things lung nurse said most lung loss is at the beginning and if eat well , keep fit and don’t smoke or do ecigs you should stay at same levels 😪

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I do ok. The hot and humid weather in Ohio now is really bad for me. Haven't been outside now for 5 days. I do use oxygen at night and when I go shopping or going for a walk with my granddaughters. There are some activities I can't do anymore...the only one I really miss is gardening. How are you?

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Not to bad at the moment finding the diagnosis scary as some people progress quickly others don’t . Have 2 grown up children not really understanding how scared I am and live alone for last 4 years x

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Hi Ksb6420 I hope you are well I too am in the US and I was also wondering how long after your initial diagnosis did you continue to smoke . Because I thought if you stopped smoking and exercise the progression slows down . I’m not sure I believe that anymore . Anyhow welcome !

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So scary this confusing information everywhere x

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Oh dear tell me about it I’m just looking for a few diamonds in the roughy like Hi I’m So in So I was diagnosed with mild/moderate emphysema 25 years ago I quick smoking right then and there , exercised 3 to 4 times a week and ate well and took my meds and here I am 85 years old feeling like 85 not dead or on constant O2 thank God I’m still Moderate although I do have good and bad days I can’t complain

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Me too x

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You are doing great, now I am jealous! I was diagnosed when I was 47 now 62. Yes I am worse now but still alive and breathing. Like you I can't really complain.

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I smoked for a few years after I was diagnosed. But I knew I had it before the doctor told me. My father had it..my older sister and my younger brothers also have it, but believe it or not it is not genetic. You can slow the process by not smoking, exercising, eating healthy and taking medication but sooner or later it will get worse, but that could be a long time from now.

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I hope your right and my specialist thinks there may be a genetic link

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So true the lungs will age with time anyway. I was only curious if you are comfortable and well enough to do basic tasks . Do you still exercise if so can you give me a few tips

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I am still doing my own cleaning, washing clothes and walking with my granddaughters using oxygen. This year I had to give up gardening which I really miss. I still get around!!!

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Do you go to gym still or anything like that and why oxygen were your says low ? Sorry to bombard you

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My oxygen at night when I slept went into the 80' and stayed there. I don't go to a gym, I love to walk if the weather permits, I also have a stationary bike. You are not bothering me, I wish I would of had someone to talk to.

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I know I think the lack of support is awful. I even suggested starting a coffee and chat in my area but lung foundation said no. I was brought up by my nana who passed in 2003 and she was my world. So no one to talk to and get a hug from or support. Wish you had the support you needed too x

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I am married and I don't think my husband has a clue what I go through, so it is nice to talk to others

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Yes the old you look ok so how are you so ill ?ridiculously you need to have your limbs hanging off so someone understands

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