Still alive 🤪 but

[aysedeniz]

It has been 4.5 years now . And voila I have 3 fastly growing tumors situated in places to end up my life . 3 profs announced me I’m inop 😪

[Peanut20233]

I’m so sorry to hear this. I’m currently going through this with my Dad although his cancer is different. His was penile cancer that spread to his bones and lungs. Truly savage disease. Torturous. Do you have family around you? Have you been given a prognosis? Are you at home or in hospital? I’m in the U.K. I see you’re in Turkey. I don’t understand much about the healthcare system over there? Are they able to offer radiation or chemo to slow the cancer? Sending big hugs and strength to you x

[aysedeniz in reply to Peanut20233]

Thank you for your kindness..I'm at home ..I have to take care of my mother too..she is 97 ,she has a hip fracture and alz. yes we have everything here ..but doctors told me that I'm not operable..my friends had chemo and radiation at the best hospitals here espacially one is a dr as well..but the end is inevitable..☠️..İ did write my case to show you that being able to get a surgery is a great opportunity..

[GCCA-Survivor Administrator]

Hi aysedeniz,

I am very sorry to hear this. Have you gotten a second opinion? I know if I ever have a reoccurrence, I would definitely get to a cancer research hospital and contact some of the AI driven therapy and clinical trial finders. No way does any Oncologist keep up with ALL the research going on around the world. AI (Artificial Intelligence) can. Definitely use it for a second opinion.

leal.health/

massivebio.com/about-us/

xcures.com/

[aysedeniz in reply to GCCA-Survivor]

The oncologist follow a protocol given to them..I'm an exception..when doctors look at my tomography they take their head in their hands and think..I can see their sadness on their face..Moreover I'm a molecular biologist and I understand my case..I have 3 big tumors in my body as far as I see..one is situated on the ovary pressing not only the ovary but the bowel and urinary system..the 2 others are liver based ..they didn't yet reach the vein but if they continue to grow yes they will🤪 do you know what is funny in my story I have all the problems one can get: tumor fever,hypertension,zona,myalgia,incipidus parathyroid problems,hb.down etc I don't know how I 'm alive...I don't know how long I will survive..Doctors say ''just live end enjoy your days'' That's what I'm doing 😀

[GCCA-Survivor Administrator]

Ugh ... I understand. I hate cancer so much it pisses me off. In my case, I was hereditary and immunotherapy was effective for me. In 2012 we hit it with chemo for 2 1/2 years and now we realize my being hereditary, chemo is very ineffective and detrimental. It is all about the mutation now and not type cancer. It almost got me. It got 2 of my cousins in 1996 & 2001. My colon cancer biomarkers were common with some lung and melanoma mutations that were benefiting from immunotherapy. So they tried it on mine in a clinical trail and it worked.

I just gotta believe there will be something that all of the sudden will be there for you. I really do. Let them put all your data out there. It can't hurt. It costs nothing to do it. There may be some crazy therapy combination that shows up.

So you "live and enjoy your days", weeks, month, years🤔👍, whatever as there is no set limit💪. I hate cancer so much and I know you do as well. I will also hate it for you.❤️

Please feel free to toss out updates to your journey. If not here, you can always shoot me things in the Chat here.

[aysedeniz in reply to GCCA-Survivor]

I' not sure if mine is hereditary..I keep studying the cases in my family and my neighborhood.

one of the oncologist asked to take some samples and analyse them..I refused since I don't have any chance for surgery..without surgery of course there are other ways to kill cancerous tumors..I asked doctors to give me a surviving case and there is none..I will just be a case study..yes in my family there are cancer: esophagus- grand pa smoking too much..breast cancer -cousine (using deo,carrying bra, movement restricted due to weight)..colon cancer -cousin(he refused to talk about cancer )etc

I believe heredity is very important but there must be some factors that activate them and overcome the immune system mechanism..

yes you are right exercise is very important in cancer cases..In my opinion it activates oxygen burning in the cell ..moreover it accelerates blood speed in veins causing cancerus cells shearing effect..

[GCCA-Survivor Administrator in reply to aysedeniz]

Hereditary meaning a germline mutation is present. This could be know pre-natal. My brother didn't have it🤔. You are right about what triggers them. I was 49 when diagnosed, but it started about 6 years earlier. Why didn't it start earlier than that? Being dMMR (deficient mismatch repair) means my MLH1 gene didn't repair and caused the cancer. My immune system didn't recognize the issue. My immunotherapy made my immune system fight it.

[aysedeniz]

I' m so glad that your body responded to immunotherapy...I hope this will keep on..my problem is with tumor fever..I'm tired of that fever..my leucocytes don't increase just fever..as it was not enough now a belly hernia started to appear..I feel tired of that battle against these diseases..I didn't know that cancer is a series of diseases