CMT ENQUIRY: I have been suffering from... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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CMT ENQUIRY

lorrie74 profile image
11 Replies

I have been suffering from hot sweats for 18mths approx.My doctor says it is caused by CMT! I am 74 years of age and so I am not menopausal.I only have these in bed and for about 20 mins when I get up of a morning.She has given me tablets.I haven't taken them yet they are called Pro-Banthine 15mg tablets

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lorrie74
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11 Replies
Amanita profile image
Amanita

Hi, Lorrie74,

I haven't ever heard of hot flushes or night sweats being caused by CMT. Best of luck with the medication - hope it will help.

lorrie74 profile image
lorrie74 in reply toAmanita

THANKS

I've not seen hot flushes as a CMT symptom . I'm 66 and I've not experienced them.

lorrie74 profile image
lorrie74 in reply to

THANKS

HorshamMalc profile image
HorshamMalc

I argree with the previous replies, I've never heard of a link between CMT and hot sweats before. CMT can have a diverse range of symptoms, but they are all related to the effects of poor neural conduction and I'm not sure how hot sweats could be attributed to that. Unfortunatedly a lot of GPs have little understanding of CMT and often either misdiagnose CMT as something else, or attribute other totally un-related problems to the CMT. I hope you get this resolved.

lorrie74 profile image
lorrie74 in reply toHorshamMalc

THANKS I AGREE WITH YOU

seasider18 profile image
seasider18

Are you sure she said CMT and not PMT?

lorrie74 profile image
lorrie74 in reply toseasider18

MAKES YOU THINK DOESN"t IT!THANKS FOR REPLYING

spabbygirl profile image
spabbygirl

I've never heard of hot sweats with CMT either, can you see another GP at your practice? Or I'd ask him/her to explain more, Horsham Mac is right, few GP's know about CMT cos its so rare.

lorrie74 profile image
lorrie74 in reply tospabbygirl

I AGREE WITH YOU.WASTING MY TIME WITH HOSPITALS/SURGERIES

Wobble13 profile image
Wobble13

Hi. do you drink alcohol or have a high intake of refined sugar? . I'm male and can expierence hotter than normal body sensations particular in the face from consuming these and in general from CMT. Before my cmt kicked in at 40 (I'm 52 now) I for instance hated hot weather and sitting in the sun, now I'm like a solar panel can't get enough. I have two acupuncture treatments a month and I can state I'm running too hot and after treatment my internal thermostat ( as I call it) gets turned down. This I believe is linked to internal inflammation .

Might be worth finding a affiliated acupuncturist.( If no improvement after 3 sessions don't go back it does not work for you) Your are wasting your time with the NHS, find alternatives and study the internet. I found clinical studies on CMT related to 16:8 fasting. This works for me with improved energy and strength. If nothing else you have saved money on breakfast.

Everyone is different keep experimenting don't give up!!

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