Charcot-Marie-Tooth UK

Hi I have had CMT diagnosed for about 12 years I recently twisted my ankle and hurt my knee was diagnosed with DVT after a couple of days

The DVT is behind my knee I was prescribed DVT stockings but have read several things that suggest they may not be advisable if you have CMT, has anybody else experienced this , I am also due to fly in June only for a couple of hours , any suggestions ?

4 Replies

Hello to Cleo9......

I have had Cmt Type 1a since my birth in 1945 : In 2005 I was also further diagnosed with Diabetes Type 2, which has now eventually led to me being recently diagnosed with Diabetic Neuropthy >(damaged nerves): Peripheral neuropathy >(nerves just below your skins surface), and outwith your spinal canal, are damaged or, a disease affecting your nerves, which may affect your sensation's, movement, and other aspects of health, depending on the type of nerve(s) that are affected:

Common causes include systemic diseases, >(such as diabetes or leprosy), or traumatic injury, or, it could be inherited >(present from birth):

In conventional medical usage, the word neuropathy usually means peripheral neuropathy:

However, also remember that the symptoms of Cmt, and Diabetes Type 2 are very similar !

If you have deep vein thrombosis >(DVT) you will need to take a medicine called an anticoagulant:

Anticoagulant medications prevent a blood clot from getting larger:

They can also help stop part of the blood clot from breaking off, and becoming lodged in another part of your bloodstream, this is called >(an embolism):

Although they are often referred to as "blood-thinning" medicines, anticoagulants do not actually thin your blood: They alter the chemicals within your blood, which prevents clots forming so easily:

There are two different types of anticoagulants are commonly used to treat DVT, namely, Heparin, and Warfarin: Unfortunately, these drugs will require close monitoring, and regular doseage adjustment, carried out by your nearest NHS anti-coagulant clinic:

It is also recommended that you wear compression >(anti-embolism) stockings after surgery until your ability to move >(mobility) is no longer significantly reduced:

Your mobility is considered to be significantly reduced if, you are bedbound / or, you are unable to walk without help / or you spend most of the day in bed / or, in a chair:

Your surgeon, or one of the healthcare professionals treating you, should confirm how long you will require to wear your anti-embolism stockings for, after your operation.

It is usually recommended that you wear your stockings both day and night, but you can remove your stockings to have a bath or shower:

At present, I have no personal knowledge of any 'link' between, Charcot-Marie-Tooth-Disease >(Cmt), and Deep-Vein-Thrombosis" >(D.V.T) ? However I stand to be corrected, if any fellow Health Unlocked reader(s) has been given different medical advice ?

Best of luck, and Good Health.....




Thanks for your comments ! X


I presume that you are also on Warfarin if you have a clot. I always wear the stockings when I have surgery. As to flying in June you would need to check with your GP as to whether this would be safe for you.



I was advised by my GP to go to orthotics to have splints fitted for my elbows, however when I told the nurse about my HNPP she said that she would not advise me to wear splints as because they are fitted tightly to help your joints it would increase the chance of more numbness in my arms. therefore she would not do it because of the extra pressure on my nerves.

Maybe this will help you.

Regards Pam


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