Pip and Charcot Marie tooth

[Megan23]

Hi I just found out I have CMT and was told to claim pip just wondered if anyone else have claimed it and was successful I have a blue badge now and in the process of having adaptions done on our house many thanks Mandy

[John1945]

Hello to Megan23.......

Yes ! you may be entitled to claim Personal Independance Payment (PIP) which has now replaced the UK's Disability Living Allowance (DLA):

The DWP's current application form is a most formidable document, which has been deliberately designed to deter you from applying:

It can take some claiments a few days to complete their application form:

It also takes a while for the DWP to inform you of "their" decision, whether you actually qualify for this benefit, as they will have contacted any doctors, or medical professionals, that can provide them with the exact details, of your own individual personal level of disability: The "Atos" decision, will be included in this DWP disability review:

Interestingly, if you are entitled to PIP, then you are then awarded automatically a "blue-badge" (that's if you apply) without any further medical evidence being required by your local council's Social Work Services:

You can also claim PIP if you have difficulties in getting around, or need help looking after yourself because of your Cmt Disability:

Your eligibility for PIP depends on what help you personally need, It does not matter if you do not actually get this help, as long as you can show, and prove that you really need it:

>PIP has only 2No. parts (also known as components):

>Previously DLA had 3No. levels:

>A daily living component – for help with everyday life, for example dressing, preparing a meal, eating, and decision making:

>A mobility component – for help with getting around:

>You can be awarded either or, both, of these componants parts: How much benefit you will actually receive depends on the level of your daily personal, and living needs, or mobility problems.

Best of luck, and go for it !

John.....(Glasgow)

PS.

Back-Ground to UK Governments decision to entirely eliminate the former DWP's Disability Living Allowance:

This 'harsh' decision also means that all existing DLA Claiments, who may have their 'orginal' DWP letter confirming that they "will have DLA Benefit for life", is now a totally worthless document to all "existing" claiments:

a) All ! existing DLA claiments, (16yrs--65yrs) will all be invited to apply for the new PIP state benefit, which now has a much harder criteria for you to prove to the DWP that you actually do qualify for PIP:

b) All ! 'EXISTING' DLA claiments, (under 16yrs or, above 65yrs) will then be transferred by the DWP, to their already, and existing state benefit

which is called Attendance Allowance:

In future this DWP existing unit will "manage" all former successful DLA claiments entitlement to the existing Attendance Allowance: This allowance has the exact same weekly financial payments, as the former DLA allowance:

At present the UK Government have instructed the DWP, to re-assess 'ALL' existing DLA UK claiments during a "rolling-programme" which will end in 2017:

All existing DLA claiments who are, under 16 years or, over 65years are exempt from this DWP re-assessment: The current UK Government has demanded that the DWP, must now target an actual total reduction of 20% in all PIP/DLA claiments receiving this state benefit within the UK:

Note:

A reduction in 'outgoing' financial benefits is the UK's Treasuary's No.1 priority:

It does not matter to them "one-jot", if any UK citizen, who has CMT Disease, and needs financial help, and support:

The DWP 'MUST' achieve a 20% reduction in all existing claiments by 2017, to meet the the UK's Goverments financial target ? At present this "harsh" decision is headed by Mr Ian Duncan Smith MP (IDS), who in his own right is a 'tory' millionaire ?

All existing claiments, who are currently entitled to, and in receipt of the DLA state benefit, will be invited to apply for the "new" PIP replacement benefit, where they will be re-assessed, and will be interviewed by a "Health-Professional", such as a physiotherapist / nurse / social worker etc, and not necessarily a qualified Doctor:

I personally have the opinion that being re-assessed locally by a DWP Doctor is not of any benefit to claiments, as the majority of NHS Doctors, will not have possession of "first-hand" knowlege of Cmt, and its many, and various symptoms, and also including the various sub-types + symptoms:

Most medical professionals may never see a one single case of Cmt in their entire medical career:

I personally have always kept politics out of my 'Health-Unlocked" posts, however we must never foget that it was a UK Labour Government ?, who started this "witch-hunt", which was then most "glee-fully-seized-on". and deliberately expanded by the current UK Conservative / Liberal-Democrat Coalition Government !

Methinks, perhaps these elected members, should all experience the total power of a democratic society's ballot box in May 2015 ?

My Tip ? ? ?

When you finally attend for your P.I.P. re-assessment, please remember, and always bear in mind, and be aware that you may be recorded on CCTV, from the car park, as you approach into the reception desk area ?

Yes, this was another "trick" used by the French company called ATOS, who most unbvelievingly were paid £13million, per year by our UK Government to achieve a total reduction of 20% DLA claiments:

This reduction "20% target" must be achieved ! This action is in despite of DLA claiments having already being medically assessed, and awarded the DLA benefit:

PIP is the "new" ball game here ! PIP Claiments must once again, start all over again, your entitlement to DLA State benefit is over:

No excuses - Get a 20% reduction getting this this State Benefit !

No excuses ! it does not matter what any individual citizens current level of their Cmt disabilty is ! "ACHIEVE THE 20% TARGET" by either "hook-or-crook" ? ? ?

[Megan23 in reply to John1945]

Thanks John 1945 for ur response to my question I have applied for pip but was not sure if u could claim it and be successful in receiving it I have so many trips back and fourth to the hospital now the extra cash would help I just hope they do speak with my consultant,physio ect who I put down on the form Instead of me seeing one of their doctors and I know what u mean with the government many thanks for ur Reply Mandy

[lowther1 in reply to John1945]

I receive DWP and have been awarded it for life, its worrying that i may be accessed as its a slowly debilitating disease. My personal circumstances are changing quite quickly, although i still do part time work in a pharmacy, i have difficulty walking to and from work, which isnt far and i use a crutch now. I have a partial paralysed diaphragm so i get breathless quite quickly. I am now 61 and have arthritis in one knee, and various other problems. My husband cooks as im not able with my hands, sometimes he has to help me dress, mostly i manage to sort myself out eventually. My work colleagues are so supportive, if they were not i couldnt do my job. My real worry is that when i get reassessed they will see i work and wont take all the other aspects into consideration, so my awarded for life means nothing.

[handmaid in reply to lowther1]

I was working full time until I was made redundant July 2019. I was planning to see my GP to get signed off sick, so the redundancy package was a bonus. I'm able to get new style DLA because I've worked for 44 years full time. Last week I returned the forms to be signed off permanantly .

I use crutches & mobility scooter I cant walk round tesco/asda . DWP state that I may be invited to visit them to see how CMT affects me. So watch this space.

[John1945 in reply to John1945]

Hello to Megan23.......

Yes ! you may be entitled to claim Personal Independance Payment (PIP) which has now replaced the UK's Disability Living Allowance (DLA):

The DWP's current application form is certainly a most formidable document, which has been deliberately designed to deter you from applying:

It can take some claiments a few days to complete their application form:

It also takes a while for the DWP to inform you of their decision, whether you (in their own opinion) actually qualify for this benefit, as they will have contacted any doctors, or medical professionals, that can provide them with the exact details, and your own individual personal level of disability:

Interestingly, if you are entitled to PIP, then you are then awarded automatically a "blue-badge" (that's if you apply for it) without any further medical evidence being required by your local council's Social Work Services:

However, please also note, that the fact that you have been awarded a "blue-badge", means "absolutely-nothing" to your PIP assessment examination for the 'new' UK PIP benefit !

You can also claim PIP if you have difficulties in getting around, or need help looking after yourself because of your Cmt Disability:

Your eligibility for PIP state benefit depends on what help 'you-alone-personally' need, It does not matter if you do not actually get this help, as long as you can show, and prove to mthe DWP, that you really need it:

PIP has now only 2No. parts (also known as components): Previously DLA had 3No. levels:

>A daily living component – for help with everyday life, for example dressing, preparing a meal, eating, and decision making:

>A mobility component – for help with getting around:

You can be awarded either or, both, of these componants parts: How much benefit you will actually receive depends on the level of your daily peronal, and living needs, or mobility problems.

Best of luck, and go for it !

John.....(Glasgow)

PS.

Background to UK Governments decision to entirely eliminate/eradicate, Disability Living Allowance:

This 'harsh' decision, or "witch-hunt" tactic, also means that all existing DLA Claiments, who may have their 'orginal' DWP letter confirming that they "will have the DLA Benefit for life", is now entirely and "totally-worthless" to all existing claiments:

Existing DLA claiments, (16yrs--65yrs) will be invited to apply for the new PIP benefit, which has a much harder criteria for you to prove to the DWP, that you are entitled to this new PIP state benefit:

At present the UK Government have instructed the DWP, to re-assess 'ALL' existing DLA UK claiments during a "rolling-programme" which will end in 2017:

All existing adult claiments who are + 65years are exempt from this DWP re-assessment: The current UK Government has demanded that the DWP, must now target an actual total reduction of 20% in all PIP/DLA claiments receiving this state benefit within the UK:

Note:

A reduction in 'outgoing' financial benefits is the UK's Treasuary's No.1 priority, and it does not matter to them "one-jot", if any UK citizen, who has CMT Disease, and needs financial help, and support:

The DWP 'MUST' achieve a 20% reduction in all existing claiments by 2017, to meet this UK's Goverments financial target ?

At present this "harsh" decision is headed by Mr Ian Duncan Smith MP (IDS), who in his own right is a 'tory' millionaire ?

All existing claiments, who are currently entitled to, and in receipt of the DLA state benefit, will be invited to apply for the "new" PIP replacement benefit, where they will be re-assessed, and will be interviewed by a "Health-Professional", such as a physiotherapist /nurse/social worker etc, and not necessarily a fully qualified NHS Registered Doctor:

I personally have the opinion that being re-assessed locally by a DWP Doctor is not of any benefit to claiments, as the majority of NHS Doctors, will not have possession of "first-hand" knowlege of Cmt, and its many, and various symptoms, and also including the various sub-types + symptoms:

Remember, that most medical professionals may never see a single case of Cmt in their entire medical career:

I personally have always kept politics out of my 'Health-Unlocked" posts, however never forget that it was a UK Labour led Government ?, who started this "witch-hunt", which was then "glee-fully-seized-on", and expanded by the current UK Conservative / Liberal-Democrat Coalition Government !

Methinks, perhaps these elected members, should all experience the total power of a democratic society's ballot box in May 2015 ?

My Tip ? ? ?

When you finally attend for your P.I.P. re-assessment, please remember, and always bear in mind, and be aware that you may be recorded on CCTV, from the car park, as you approach into the reception desk area ?

Yes, this was another "trick" used by the French company called ATOS, who most unbvelievingly were paid £13million, per year by our UK Government to achieve a total reduction of 20% DLA claiments:

This reduction "20% target" must be achieved !

This action is in despite of DLA claiments having already being medically assessed, and awarded the DLA benefit:

PIP is the "new" ball game here !

All PIP Claiments must once again, start all over again, your entitlement to DLA State benefit is over:

No excuses - Get rid of 20% claiments this State Benefit !

No excuses ! it does not matter what an individual citizens level of Cmt disabilty is, you must "ACHIEVE THE 20% REDUCTION TARGET" by either "hook-or-by -crook" ? ? ?

[steveshawx]

you can apply for PIP, but be aware that you don't automatically qualify unless you meet the criteria. i.e: unable or virtually unable to walk unaided the length of a bus! Be considered in your application and ensure you tell what you cannot do and how it affects you. The forms are difficult and are designed to be difficult. Good luck

[bev5985]

i claim DLA as PIP is not yet in my area

[John1945]

Hello to Bev5985......

Don't you worry, the DWP will already have you targeted on their "radar" !

At present they are inviting all existing UK DLA claiments, to apply for the new Personal Independent Payment (PIP) benefit, by using your 'Royal-Mail'post-codes to form the areas to re-assessed next:

As stated in another 'Health Unlocked post, your existing entitlement to DLA, does not matter "one-single-jot" to the DWP: The 20% reduction, demanded by our current UK Government, is all that really matters to them ?

The new re-assessment/application PIP form, that you will have to complete is most deliberately designed to deter existing all DLA claiments from applying for PIP:

This massive exercise to reassess all DLA-CLAIMENTS UK wide is due to be completed by 2017, in the UK:

However, if you do not meet the DWP's new and "much-tougher" PIP criteria, you may lose, or have your existing DLA benefit(s) stopped, or possibly, and greatly reduced !

[Exhausted101]

Hi Megan, thanks for "following" me

I've been receiving DLA on a "for life" basis and haven't yet had any blurb informing me of when I need to be re-assessed for PIP. I believe those of us that fall into that category will have that pleasure starting later this year (although I may be mistaken) so sorry I can't offer any advice.

All I can say is, that having read through the blurb surrounding it, you need to go through the application with your abilities (or lack of) with your worst days in mind.

[John1945]

Hello to Exhausted 101......

If you go online to the DWP's website, you will find their proposed programme up to 2017:

It is based on your current postcode location:

Also, please do not expect a qualified NHS Doctor, who has experience with Cmt disease and its particular symptoms, to personally re-assess you, and decide if you qualify for PIP, within the "new-tougher-criteria":

To complete the UK Governments re-assessment programme by 2017, the DWP are employing, additional assessors from, Physiotherapists, Sisters/Nurses, Social-Service Workers etc, etc:

Anyone will do ! as long as the task is completed by 2017:

You will have already experienced that the majority of G.P's. have never seen a "single-case" of Cmt in their whole of their medical career ?

[Exhausted101 in reply to John1945]

Thank you John, for, the info. And yes, I have seen more than my share of doctors who are clueless about CMT (including one who was married to a consultant neurologist). Fortunately most of them have been happy to be educated. Remains to be seen how willing the DWP people will be!

[nikkiogi]

Hi,it was still DLA when I applied. I was awarded it and it has recently been moved on to the next level. Private message me if you want more info. What type of CMT do you have. Which consultant did you see?