nocturia

[GettinThruIt]

hi everyone

I’m wondering who in this crowd has had success dealing with nocturia? I’m probably only asking males? because in my case it’s prostrate related but all advice is definitely welcome ..

[BigfootT]

So I'm not sure what you're looking for regarding "success", but I'm a twice a night nocturia guy post- TURP. I was diagnosed with BPH in 2020. I took either Tamsulosin or Terazosin until Feb '24 when I elected to have a Aquablation TURP. At that point I was up at least 3 times a night (OBTW....I thought Terazosin worked better than Tamsulosin.) During the work up for surgery they found a bladder legion and did a biopsy. It was benign but indicated cystitis (bladder inflammation) and post-op they found CLL in my prostate. This happened coincident with my CLL diagnosis and I was actually diagnosed with CLL the same day I was discharged for the TURP. I've had a fairly slow and imperfect TURP recovery and I believe it's CLL related, but my urologist isn't sure, but he's never had a CLL patient before. My CLL specialist isn't surprised I had CLL cells in my prostate, but isn't sure it's causing the problems. Bottom line the Aquablation wasn't a walk in the park, but Im glad I did it. I'm still living with some nocturia, but it's better than it was and the other symptoms are gone. My only advice is to cut back on liquids after about 7pm.

I did try Gemtesa which is a bladder relaxer drug. It worked well, but I decided I'd rather deal with a wake or two a night than take Gemtesa for the rest of my life.

Bigfoot

[Spark_Plug in reply to BigfootT]

Yes, I agree with cutting back on the time to stop fluid intake if one doesn't like making night trips. My urologist switched my Tamsulosin to Alfusosin (sp?) and I saw improvement.

I find it unusual that your urologist never had a CLL patient before, mine actually was the one to notice my CT scan and sent me to an oncologist / hematologist for confirmation. Of course yours was found through TURP.

[BigfootT in reply to Spark_Plug]

The timing for me was pure coincidence. My Primary care doctor suspected CLL and sent me to Hematology while I was in pre-op workup for the Aquablation. I was actually in a hospital room with my urologist getting released and going over the post-op procedures when my Hematologist called my cell and told me I had CLL. It was a banner day. The following day patholology reported the leukemic cells in their post-op report.

My urologist is mid-30's. So is my CLL specialist. Both highly competent, but a bit short on experience I suspect.

[RZ8983DV]

I had BPH was on Tamsulosin for about 3 years went into retention had Holep but still get up once in the night. All thisis is years after my CLL diagnosis

Dave

[LeoPa]

I did. It wasn't bad, I used to wake up once during the night to take a leak. I was diagnosed with benign prostate enlargement in 2018, during my third UTI episode. No more UTIs, no more waking up during the night, I empty the bladder completely. This was confirmed by sonography. Last measurement showed a strong urine flow. No dripping after the business is finished. And my PSA dropped from 2.35 to 1.88. 6 years ago my prostate was 38 mm last check was 43 mm. I'm off all medications now. We'll see in 6 months how it is going. If you check my posts and profile you will see how I went about it. In short: no dairy!, no carbohydrates, no plants in the diet. I run on meat and eggs exclusively. If you have any questions just send me a private message.

[W00dfin]

My urologist recommended hydrating early in the day and tapering off liquids later in the day.

[Mining_Guy]

it is a matter of experimentation. I just slept 7.5 hours straight for the first time in a year. Oddly, I drank water before I went to bed as not drinking water before bed did not work for me. The theory is that it reduces the concentration of your urine so it does not irritate your bladder so you don’t get up to go pee. Also taking some magnesium glycenate in pill form before bed. My sleeping has gradually increased from just a few hours to 7.5 hours over the past few weeks as I dial in what works for me. Keep experimenting.

[MU2011]

I have BPH and found success with taking a natural herb Saw Palmeto 450mg before bedtime.

[GettinThruIt in reply to MU2011]

I use that. It solved thr urgency but not the frequency