Getting back to normal!!!!!

[Walfo]

Hi all I’m back after losing half of right lung in the operation and it’s confirmed growths directly due to my cll. The consultant has ordered a further scan in twelve weeks time and then I go from there as regards any more treatment. Has anyone had a similar experience? I cannot really understand how Cll has caused my to have such a drastic operation and I’m told they we size 11 so had to come out. I’m a little confused.

[234me]

Thinking of you

[Walfo]

Thanks so much

[ygtgo]

Hi Walfo

Sorry that you had to go through all this.

I like your heading ... Getting back to normal!

It's what we all try to do.

I hope that things go well from now on.

ygtgo

[cllady01 Former Volunteer]

Walfo, it is good to hear from you and that the operation is over and you are on the mend.

CLL --B-cells can appear in almost any organ. Since it is a blood disease and blood is everywhere in our bodies. I can't explain why CLL may accumulate in one place and not another, but it happens.

I think that may be a better diagnosis than having it be lung cancer. The treatment can be for CLL and not be complicated by having 2 different cancers to treat.

Best wishes for a good, strong recovery from the operation.

[Walfo]

I couldn’t agree more thank you

[1ofakind]

Oh my!You have had a tough time !

Hope it feels like clear sailing from now on .... Speedy recovery!!

Normal sounds like a great goal!!

Be well!!

[Walfo in reply to 1ofakind]

Thank you and you sound positive .

[blowinginthewind]

Thinking of you, I hope your recovery from surgery is smooth, take care and be gentle with yourself.

[Walfo in reply to blowinginthewind]

Thanks for your kind words.

[Gisygirl]

So glad you are on the mend. Take care.

[Walfo in reply to Gisygirl]

Thanks very much.

[F550]

Good luck with your recovery.

I have SLL. After 9 months on ibrutinib we decided to reduce my dose in hopes of reducing the side effects. I just had a PET scan. The treatment is working well, but the report said that there is "centrilobular emphysema with peripheral blebs" in the lungs. This was not reported in the previous scans. Maybe there was too much SLL in the way. Maybe it is new and a new side effect. I don't smoke.

Mike

[Walfo in reply to F550]

Sounds like one step at a time with your treatment and that’s how we deal with this I’m sure keep strong .

[cll2013]

How did you know you had the problem? Did you have a cough?

[Walfo in reply to cll2013]

I was worn out getting breathless whenever I took a walk and I developed a cough so I was sent for a pet ct scan I do hope I’ve answered your. Question and may I add that I am now so much better .