CLL Treatment : I was dx with CLLOver 5 years... - CLL Support

CLL Support

22,987 members39,473 posts

CLL Treatment

Flyfisher70 profile image
6 Replies

I was dx with CLLOver 5 years ago. I have been on ibrutinib since. Now 76 years old. I cross-country ski, golf, paddle board and generally feel pretty darn well. My doctor tells me "you're awfully healthy except for that blood thing ". So hang in there.

Fly fisher 70

Written by
Flyfisher70 profile image
Flyfisher70
To view profiles and participate in discussions please or .
Read more about...
6 Replies
gardening-girl profile image
gardening-girl

Wonderful that you are doing so well! Definitely hang in there Flyfisher70!

Ellieoak profile image
Ellieoak

That is great to hear. I was diagnosis with CLL 22 years ago. I have been on 5 different treatments so far and still going strong. Keep up the good work. Anna

Lilsa profile image
Lilsa

Hi Flyfisher,

I am 77, CLL diagnosed 10 years ago, one treatment. Just back from a week at the coast and admiring the early morning stand up board paddlers! I would really love to give that a go! Very envious of you.

Lilsa

CLLCalifornia-USA profile image
CLLCalifornia-USA

I love it. My doctors say if it wasn’t for CLL, I would be healthy. 😂 After starting Ibrutinib, I haven’t looked back. It has given me my life back. I am active doing the things I enjoy. I don’t know how long it will last but I’m enjoying each and every day. Great news. Sally

Curling123 profile image
Curling123

Great to hear life still goes on with CLL. You have a variety of interests. Must require mixing with a lot with people, although most are activities outdoors. Are you cautious around people? That is always my concern and limits many social activities.

skipro profile image
skipro

Thank you for your positive post!!!!!

Not what you're looking for?

You may also like...

Cll treatment

Hi everyone! I would like to introduce myself first. I am 56 now and I am CLL patient after 5...

CLL Treatment

Hello All. I was diagnosed with CLL about 8 years ago and until this year was on 'watch & wait' but...

CLL Treatment concerns

Hello all, I have different options for my treatment, I have a lot of enlarged lymph nodes in my...

CLL treatment options

I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR...

Current best CLL treatment?

I noticed my platelets have steadily been going down. I had been on Ibrutinib for almost 2 years...