CLL RESEARCH: I was contacted by a research... - CLL Support

CLL Support

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CLL RESEARCH

Safel profile image
3 Replies

I was contacted by a research company wanting to interview people in treatment for CLL. I'm currently W&W but thought others here might want to be paid to have their thoughts heard.

Edit; link presently removed by Admin

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Safel profile image
Safel
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3 Replies
Newdawn profile image
NewdawnAdministrator

Any requests for questionnaires need to go through the CLL Support Association I’m afraid Safel. I’m sure this is entirely legitimate but we cannot have the site used without checking provenance of the organisation. Especially if money is concerned.

I’m afraid I’ve had to remove the link.

Newdawn

Safel profile image
Safel in reply toNewdawn

I have sent it to CLL support I can also pass you contact details.

Seems a shame to waste the opportunity

Newdawn profile image
NewdawnAdministrator in reply toSafel

That’s fine if it goes through the approved route Safel. If they approve, the link can be re-posted. Naturally we are keen to further CLL research but need to be very careful when dealing with members’ personal information.

Regards,

Newdawn

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