CLL Tiredness

[Stavrou1]

Good morning

I have been on W &W since being diagnosed last September I just wondered if others are feeling tired , effecting daily life even with pacing ?? .

😊

[nvrbeold62]

Good morning - sorry to hear that the year 2020 came to a close with this news for you. Sometimes it just feels like it’s one thing after another.

But to your question, absolutely yes. The best remedy for me in my earlier stages (2017-2019) was exercise. It really helps. But with covid my tennis club shut down and this winter the fatigue has truly been the worst for me. It’s the kind of tired where if you let yourself drift off during the day I even only for a few minutes, you awaken feeling really (really!) heavy. It reminds me of what I felt like as a teenager after I would fall asleep for an hour in the late afternoon. Just a total a$$ kick.

For me I wondered if maybe some of it was the power of suggestion after my diagnosis, but now there is no question it gets me down. Harder to focus too.

I hope your watch and wait journey is long and uneventful. One thing I can say about that, after a couple of years, for most it’s a lot less scary and bothersome than that first few months.

[Stavrou1 in reply to nvrbeold62]

Thank you for Your reply been helpful . Bless you !. feel for us all in this times . Horrible and hard too stay focus !!! I do try and walk 3 or 4 times a week . At the moment only once this week. Want to but sometimes my glands flare up ., than i start thinking doing more harm than good , feel better , an hour later shattered!!!. . Wish you well too. 😊

[lankisterguy Volunteer]

There was a good discussion on this two days ago: healthunlocked.com/cllsuppo...

Please look on this page for the box labeled " Related Posts"

*cll and extreme tiredness healthunlocked.com/cllsuppo...

*CLL constant tiredness healthunlocked.com/cllsuppo...

*Been told tiredness isn’t a symptom of cll healthunlocked.com/cllsuppo...

*Aged 37 - New CLL diagnosis - any advice on tiredness and exercise appreciated healthunlocked.com/cllsuppo...

*Extreme fatigue and CLL healthunlocked.com/cllsuppo...

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There are 205 previous posts that mention "tiredness" here: healthunlocked.com/cllsuppo...

And 1293 that mention "fatigue" here: healthunlocked.com/cllsuppo...

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Len

[Stavrou1 in reply to lankisterguy]

Thank you for that . 😊

[sun_flower]

Oh yes l do for example yesterday l felt tired all day couldn't get going at all just had to give up and have a nap but this makes no difference really, l do feel a walk helps though l have also just been feeling yuk lately take care x

[Stavrou1 in reply to sun_flower]

Join my world , sympathise very much . 😊

[Stavrou1 in reply to Stavrou1]

Hope it gets easier . I guess the key listen to your body .. ...nothing gets done on it's own..

[sun_flower in reply to Stavrou1]

💕its horrible 😪 not sure if it's the cll ?

[ladyscream]

Hi me too, feeling very tired, sore throat, achey body, slept for hour and a half yesterday and all night still not refreshed.Maybe it’s that time of year and generally what is happening.

[Stavrou1 in reply to ladyscream]

Thanks for reply . Yes S.A.D awful . Not long till clocks change longer days and hopefully warmer and 😎. Hope you pick up.

[sun_flower in reply to ladyscream]

😪