Home again. : Got home at around 20:30 after... - CLL Support

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Home again.

Jacksc06 profile image
29 Replies

Got home at around 20:30 after first cycle of Rituximab. Had a poor night's sleep on the ward as usual, so hoping to sleep well tonight. No major dramas during the infusion. Bit of a headache and feel like I'm on fire but generally OK. Next cycle is Tuesday next week so one down three to go. Love and strength to all.

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Jacksc06 profile image
Jacksc06
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29 Replies
mrsjsmith profile image
mrsjsmith

I must be one of those strange beings that sleeps well in hospital, perhaps it’s the 💊 and lack of 🐈🐈 in the middle of the night. Gets some rest.

Colette

Jacksc06 profile image
Jacksc06 in reply to mrsjsmith

Thanks Colette. It's the constant awakening for obs plus other patients and its not my bed. Will see how I am tomorrow.

mrsjsmith profile image
mrsjsmith in reply to Jacksc06

I seem to be good at sleeping through those. I just seem to find the shape of the hospital beds perfect for me, unlike the dreadful showers. Sleep well tonight. 🛌

BobbyFour profile image
BobbyFour

I can sleep anywhere at home, but not on strange beds - hotels or hospitals! It sounds like you are off to a good start though!!

Jacksc06 profile image
Jacksc06 in reply to BobbyFour

Thanks, yes there's no bed like your own. I hope the next three go as smoothly.

Fran57 profile image
Fran57 in reply to Jacksc06

Good that you’ve done the first one and you’re sounding positive. Hope you sleep better now you’re at home,

Fran 😉

Jacksc06 profile image
Jacksc06 in reply to Fran57

Thanks Fran. Slept quite well.

Mtk1 profile image
Mtk1

I could never sleep in hospital, there’s nothing like your own bed. Good luck with next treatment.

Dave

Jacksc06 profile image
Jacksc06 in reply to Mtk1

Thanks Dave. I tend to walk the hospital corridors at night until I'm shattered, and sleep in the day but it's never good sleep.

bennevisplace profile image
bennevisplace

My sympathy, I never had a decent night's sleep in hospital, too much commotion in the corridor. Have you tried earbuds and white noise on a phone app? It gave me some respite.

Jacksc06 profile image
Jacksc06 in reply to bennevisplace

My further three infusions are in the day suite which will be better.

bennevisplace profile image
bennevisplace in reply to Jacksc06

👍

Ballyhoo777 profile image
Ballyhoo777

🙏

Jacksc06 profile image
Jacksc06 in reply to Ballyhoo777

Thank you.

Walkingtall62 profile image
Walkingtall62

Hi Jack. That is amazing to hear. Thanks so much for taking the time to let us know. Sorry I didn’t reply last night, I was already in bed and asleep!! Hope you got some sleep too. Don’t forget your lovely neighbours if you need anything.

Jacksc06 profile image
Jacksc06 in reply to Walkingtall62

Thanks. Had a good rest. Feeling OK today.

CLLCalifornia-USA profile image
CLLCalifornia-USA

Prayers for each day to get better.🙏Sally

Jacksc06 profile image
Jacksc06 in reply to CLLCalifornia-USA

Thank you Sally.

Stamphappy profile image
Stamphappy

How wonderful to be home tucked back in your own bed with familiar surroundings 😊 A good nights sleep is certainly in order. Thank you for sharing your journey. Wishing you all the best.

Jacksc06 profile image
Jacksc06 in reply to Stamphappy

Thank you.

Peggy4 profile image
Peggy4

Weirdly I rather like things going on so lights and background noise din’t affect me too much, Nice to be home I bet.

Peggy

Jacksc06 profile image
Jacksc06 in reply to Peggy4

Yes it is Peggy. Puss is happy I'm home.

Mogane profile image
Mogane

Beat wishes, Jack. Everything is better once you’re home in your own place.

Jacksc06 profile image
Jacksc06 in reply to Mogane

Thank you.

Mystic75 profile image
Mystic75

Hi Jack,Hope you were able to get a good night's sleep.

It is lovely to see you posting again. I hope things are better for you. ❤️

D.

Jacksc06 profile image
Jacksc06 in reply to Mystic75

Thanks D. Sleeping OK. I have an air filter in my bedroom which helps.

Mystic75 profile image
Mystic75 in reply to Jacksc06

That's a great idea, Jack. Glad you are able to get some rest. 👍

CycleWonder profile image
CycleWonder

Glad to know you are home again and have some time off before the next infusion. Be kind to yourself. Thank you for letting us know how you are faring.

Jacksc06 profile image
Jacksc06 in reply to CycleWonder

Thanks. Resting lots.

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