Thank you everyone: who helped me with my... - CLL Support

CLL Support

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Thank you everyone

Adlucy profile image
4 Replies

who helped me with my questions about how to prepare for starting my treatment with Obinutuzumab and Venetoclax and about driving. I haven't been able to reply to everyone individually as I wanted to as I was overtaken by events with my husband having an accident and being in hospital for two months.

I just wanted to say I acted upon the many tips I received, which were so helpful.

Thank you everyone!

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Adlucy profile image
Adlucy
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Skyshark profile image
Skyshark

I have another tip. Take a can of squirty cream and mini marshmallows in and upgrade the NHS hot chocolate.

Hope your hubby is getting well.

Adlucy profile image
Adlucy in reply to Skyshark

Sounds a plan but perhaps I'd better not! It sounds delicious and provides a feel good factor!

My husband is getting better thank you but it will take time.

Gradyboy profile image
Gradyboy

So how are tolerating your treatment? Which cycle are you in? Hoping your husband is home and doing much better.

Adlucy profile image
Adlucy in reply to Gradyboy

I've just started on 100 mg so I'm in the Second Cycle. I have tolerated the treatment ok but I did get a bit neutropenic and was given an injection to boost cell production. The first infusion of Omnituzumab was the hardest but I think a lot of people find that. I got very cold had lower back pain and was exhausted on the first day of the first infusion but the second day was fine and for some reason I had an abundance of energy that night!

How are you doing?

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