Greetings Everyone,
I want to share our latest experience with CLL and the treatment we started with Acalabrutinib.
My mom started getting severely worse by the hour with huge lymph nodes in her neck and abdomen, so we started Acalabrutinib. In the first week all her lymph nodes got very reduced in size, by the first 2 weeks the ones in the neck almost completely disappeared. Now 1 month passed and she got a completely new lymph node on the neck since yesterday. Is that normal did you have similar experience? We will consult with the doctor probably on Monday.
On another hand, she has blockages in the arteries and reduced blood flow to the legs. SO the doctor advised her to not stop the Plavix but it resulted in massive bruising especially on the face, so we stopped it.
Regarding the blood work, the WBC worsened a bit as it was expected but nothing have moved too much, except for the kidney measuring test which improved severely.
So I wonder, was your journey with Acalabrutinib steady constant improvement or having the new lymph node is normal?