Cll/ richters : 6 rounds RCHOP addition... - CLL Support

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Cll/ richters

Cactusroadster profile image
19 Replies

6 rounds RCHOP addition venotoclax treatment was only choice and apparently correct one for my diagnosis! Have been treated at MD Anderson

Just putting this out there for anyone else with Richters diagnoses

“Complete Remission !”

Pet scan Monday fingers crossed 🤞

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Cactusroadster profile image
Cactusroadster
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19 Replies
Newdawn profile image
NewdawnAdministrator

Wishing you the very best results Cactusroadster! 🤞

Hope the treatment hasn’t been too unpleasant.

Newdawn

Cactusroadster profile image
Cactusroadster in reply to Newdawn

do not want to think re that part

Cheers!

Poodle2 profile image
Poodle2

Same here, hoping for great results for you. Sorry you had to go through it but it's all in the past now and focus on the future, hope it's very bright and "boring" ❤️

Cactusroadster profile image
Cactusroadster

w I’llll never be “ boring!”

Poodle2 profile image
Poodle2 in reply to Cactusroadster

I meant "boring" as in uneventful in terms of what you went through 🙂sorry if it didn't make sense.

Jooby59 profile image
Jooby59

Brilliant news. I finished 6 rounds of R CHOP in October and now take Acalabrutinib which has given me remission from Richters too. Lets hope it lasts for both of us.

Cactusroadster profile image
Cactusroadster

did u have cll /sll previously?

Are u being treated at MD Anderson?

emmiekay profile image
emmiekay

I was diagnosed with Richters in 2007. Had six rounds of R-chop. Also had one year of venetoclax in 2018. Congrats on your remission

LeoPa profile image
LeoPa in reply to emmiekay

At the same time or one after the other?

Cactusroadster profile image
Cactusroadster in reply to emmiekay

are you still on venetoclax?

emmiekay profile image
emmiekay in reply to Cactusroadster

No, I took it for a year and stopped in 2018.

Cactusroadster profile image
Cactusroadster in reply to emmiekay

that’s hopefully what I’ll do . as for now docs say on venetoclax indefinitely!!

One day at a time pet scan shortly

Thank you

claree_ford profile image
claree_ford

excellent!

Delighted hear this❤️

Raleigh59 profile image
Raleigh59

so really happy for you

Samm22 profile image
Samm22

This is great to hear! I am at high risk for Richters so positive news make me hopeful. Wishing you continued great results.

studebaker profile image
studebaker

Congratulations 👏 and wishing a very long, happy, uneventful remission 🤞🏻

Dana

Rando21 profile image
Rando21

Good news!

LadyWingshot profile image
LadyWingshot

congratulations!!!

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