ENTROPION Lower eyelid turned inwards)

[unairdefamille]

Has anyone with CLL had such a nuisance? If so, please LMK how it was treated 🤔

[cllady01 Former Volunteer]

I have not had this eyelid problem, however, I wanted to share with you the Mayo article dealing with the subject:

mayoclinic.org/diseases-con...

I hope you have an appointment with an Opthalmologist soon, as it must be quite uncomfortable and it can't be good for the hydration of the eye itself.

Please let us know what the Dr. says is the reason and how it will be treated.

[unairdefamille in reply to cllady01]

Thank you so much for the info. Most helpful. I did see an ophthalmologist who recommends surgery. It makes me very anxious, but I hope I will be relieved after it's done.

[cllady01 Former Volunteer in reply to unairdefamille]

I know it is scary to contemplate--it seems most of our worry is spent in time of having to wait for what we are anxious about to arrive and be done.

Since you are on Acalabrutinib and maybe still having subcutaneous IG injections, I hope you have talked with your CLL provider and all is aok to go ahead with the operation asap.

The "norm" (if there is one) for operations is to take a break from the treatment and the timing is important.

Please know we are here and there have been many operations of various kinds preformed with great success. We would expect that from your situation and will be thinking of you, anxious to know how you are doing. When you can, please update us.

Sending you a virtual hug.

[unairdefamille in reply to cllady01]

Hugs back 🤗. Thank you so much for your kind words and understanding. I will keep you posted, promise 🤞💖

[unairdefamille in reply to cllady01]

I got it done yesterday!!!!!!!! in spite of a debilitating sore back, probably due to nerves. Glad I did it, now I need to be extra careful and patient to make sure recovery goes smoothly. For the moment the operated eye looks like a puppy dog's. The swelling needs to go down. I will resume taking Calquence tomorrow. Thnk you all of you for your concern 🥰

[cllady01 Former Volunteer in reply to unairdefamille]

Good on you! May the healing go well. Take Care.

[JigFettler Volunteer in reply to cllady01]

Good link to share.

Yeh! Corneal scarring a risk, needs attention ASAP.

Jig

[Pin57]

Sorry to read your eye has entropion.

Cllady article she provided is a good one. The surgery part (should you decide to have surgery) explains well what to expect.

Reason I know is I had a similar surgery repair for my upper droopy eyelid (ptosis it’s called) about 10 years ago. I note that to hopefully help you with your being anxious about eye surgery (I was too!).

Had the outpatient procedure on a Friday n went to work on the following Monday, so it’s not a major operation, n complete recovery is pretty fast. My co-workers thought my bruised eye was from playing hockey, lol. As the article noted, they’ll likely be some initial tightness in the eye area from the stitch work, but that should go away quickly as will the bruising. In my case, the surgery went well thanks to the surgeon who had lots experience with eyelid surgeries.

I recommend get it done! My eyelid repair improved my vision n looking back I should of had it loooong ago (was born with a droopy eyelid).

Hope my fortunate good experience story helps your anxiousness. Wishing you the very best should you decide to have surgery!

[unairdefamille in reply to Pin57]

Thank you so much! Yes, it does help. The idea of lying there awake while they repair the most fragile part of my face is the scariest. I'm afraid of making the wrong move or to sneeze. Silly thoughts like that 🙃🤣.

[Pin57 in reply to unairdefamille]

They’ll take good care of you no worries about moving, they will have you tied down well. You’ll be numbed up (feel no pain) … I get your overall concern, surgeon working near your eye, it’s normal to be scared.

As for the sneezing concern (good question), suggest ask your surgeon how they counteract that possibility.

Good luck, sounds like your gonna do it ?… look forward to great outcome news, if you wish to share .

[unairdefamille in reply to Pin57]

DONE & RELIEVED 🙏🏼

[Pin57 in reply to unairdefamille]

Great! n no surgery … appears the ice bathing worked. Good for u! Congrats!!!🎉

[unairdefamille in reply to Pin57]

I did the surgery. Now, It's recovery time... 🙏🏼💖

[Pin57 in reply to unairdefamille]

Oh… misinterpreted one of your replies about ice bathing your eye, so … you did get the surgery and you sound happy about it! 😀

Have a good/speedy recovery.

[unairdefamille in reply to Pin57]

Thanks a lot. Recovery can be testing, but I am hopeful for a speedy, easy recovery 😊

[blowinginthewind]

I have the opposite = Ectropia - my eyelids turn outwards. I was given various eyedrops/atrifical tears and a gel for night time. I didnt like them, especially not the right time one. It was optician who had given me them, he said that I had "very dry eyes." I then started to use a particular eye wipe - Blink - twice a day and always had some in my bag. They were soft and gentle and got all the gunk off my eyelashes, Then they stopped making them because of wipes being bad for the environment.

I now bathe them with warm water on a cosmetic pad each day - I leave the pad o each a minute or so. The water is cooled boiled warm water, not from the hot water tap - latter has a slight infection risk. I have some other lid wipes - with the very original name "Lid Wipes." I always carry those with me so that if I need to de-gunk my eyes when I am away from home, I can do so knowing that the thing I am using is sterile.

I hope you find something that works for you.

Liz in UK

[unairdefamille]

Thank you Liz. I hope so too 🙏🏼. Best to you!!!!!

[New-bee-cell]

My mom, at age 92, had this surgery about 6 months ago. It went very well. Following surgery, she had significant bruising all around and under the eye which resolved in about a week. We put drops in the eye and ointment on the lower lid for about a month. (I think the ointment continued for a while afterwards while the stitch(es?) dissolved. I believe they were antibiotic and (possibly) anti-inflammatory. All is well now and she continues to enjoy reading and watching the birds in the garden. 🙂

[unairdefamille in reply to New-bee-cell]

Thank you so much for sharing. It is reassuring. All the best to you and your mum 💖

[unairdefamille in reply to unairdefamille]

I did it! No pain, but my eye is much smaller now 🙃.Did your mum's eye return to its original size? I know it's a question of aesthetics. I guess, I still care about what I look like.

[unairdefamille in reply to unairdefamille]

I need to bathe the eye with icy cold compresses every hour for 20 minutes for 2 days...