CLL and environmental allergies

[JerrysGirl3]

This morning i woke up with such swollen nodes in my throat and in my chest by airway where the majority of my nodes are , I was actually panicked! But I also don't know if environmental allergies are the cause. I'm better in AC. Does anyone get this bad reaction to environmental allergies and does CLL make it worse? I mean i literally walked down two steps and was having trouble breathing which never happened before. Ever.

[cllady01 Former Volunteer]

Kerry, I don't have an answer for your not being able to breathe, but I do hope by now that you have seen a Dr. to get an assessment of what is causing your first ever time to be breathless from walking down two steps.

You seem to be trying to diagnose yourself and deciding the problem is environmental allergies, but state this has never happened to you before--If this were my situation, I would be seeing my Primary Care Dr. asap. Allergies are a common complaint for many of us, and the place to start finding out the reason for any sort of illness that crops up seemingly out of nowhere is to see your Primary Care Dr.

Best wishes for getting this taken care of and feeling better.

[JerrysGirl3 in reply to cllady01]

I actually just recently changed primaries and have seen him once as a newbie and once with an issue. I love him 😊

[JerrysGirl3 in reply to cllady01]

Seeing him today

[Tommays56]

H Jerry

In my case while I always had some level of allergies since the CLL I required a prescription nasal spray and a daily tablet to keep thinks in control

Now a days without the allergy treatments the symptoms get so bad I feel physically sick if for example I don’t use the spray before taking my outdoor walk

[JerrysGirl3 in reply to Tommays56]

That's interesting to know. I can't tell if it's allergies. Covid (I've already tested negative ), a chest infection starting up or what. I think I will call primary today.

[LeoPa]

Swollen nodes from environmental allergies are one of the things I never heard about.

[SofiaDeo in reply to LeoPa]

You never heard of Sick Building Syndrome? Seasonal allergies? Mold, mildew, dust, dust mite allergy? New carpet giving off fumes? MDF board off gassing? Those are considered environmental. And lymph nodes can swell from any challenge to the immune system.

[onu1tadi2 in reply to SofiaDeo]

U have those allergies and usually cough because of them. But wonder how you can tell if you have swollen nodes?

[SofiaDeo in reply to onu1tadi2]

If internal ones are swollen, you wouldn't be able to tell except by scan. I am thinking more along the lines, of how we can feel our throat or occipital nodes when fighting off something respiratory. Pre-CLL, whenever I got a sore throat I know I would "feel" to check the nodes where my jaw met my neck. Lymph nodes always are moving, from the lymph flowing through them. Its just, I can imagine some people with CLL having their nodes "over react".

[onu1tadi2 in reply to SofiaDeo]

Thank you.

[LeoPa in reply to SofiaDeo]

No, never heard of enlarged nodes associated with those allergies.

[JerrysGirl3 in reply to SofiaDeo]

I have but never thought of that although I haven't been anywhere to have been exposed. I was talking about tree and grass pollen!! Now I think it's a sinus infection. The mucous is changing colors ....I have a 3:30 pm today with primary .

[SofiaDeo in reply to JerrysGirl3]

And if you have been ill to the point of being behind on dusting/vacuuming, dust mites might be aggravating the problem.

[JerrysGirl3 in reply to SofiaDeo]

SofiaDeo. How do I "pin" medical groups ? I just posted a long post regarding the situation I've been going through with the two doctors and I didn't know if it was a question or a post and it kept tagging anticoagulant medicine!!! Will it be seen by the CLL community ??I'm really frazzled and upset....

[SofiaDeo in reply to JerrysGirl3]

I sent you a message through the "chat" tab, we can continue a conversation there!

[JerrysGirl3 in reply to SofiaDeo]

I called their pharmaceutical company who had billed it out already !!!! But after pharmacist spoke to me she took it back. So that's good. Also called first, original doctor and made an early July appt so I have things under control and will stay with doc and hospital that is the most organized.