Our stay at home was not meant to be...
Friday morning my husband noticed a red, raised sore area on his arm from where the IV had been - he complained about it and figured we would watch it for a bit, anything not to have to go back to the hospital.
Well, every hour it seemed to get a little bigger and by 8pm that evening he was running a low grade fever and here we go back to the hospital through Emergency. The emerg Dr. was very kind and diagnosed it as a staph infection - sweet mother does it ever end. He respected our knowledge and input on the CLL side especially when the blood work came back and WBC was 85 so we were up from Thursday's 75 which made sense because of the infection.
He sent us home around midnight (which was not bad total of 4hrs) with an ultrasound appointment for the next morning at 9am, for my his arm (needed to rule out a blood clot) and we had to go back to emerg and receive another IV antibiotics.
By the morning the infection had spread extensively - by 10:30am Saturday morning we received 2x the antibiotics. Long story short the emerg Dr. requested a medical consult and it took 6hrs for the consult to happen - we were beside ourselves. Naturally the infection just kept spreading and his arm became extremely bloated.
He was admitted around 9pm and has been receiving antibiotics every 8 hrs.
Because of the CLL and adding the compromised immune system - this time around our fear was that he would not die from CLL but because of an infection. Which in this world of ours is more common than we care for.
Death is something we certainly talk about however prior to the last 2 - 3 weeks we still believed it was quite a ways away. But at the moment we are both so emotionally fragile with this disease the thought of death has really surfaced and remained there.
However, we are managing it and we are very fortunate to be able to discuss our fears with each other which really helps.
This morning I woke up and the sunny was shinning very bright and it was a great reminder of how fortunate we are to be alive - I headed to the gym for my stress release and now off to see my love.
I will leave you now for awhile - but writing and posting our experience has really helped us and I hope we have not taken up to much of your time and life.