Mosquito bites: Hi there, I was diagnosed in... - CLL Support

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Mosquito bites

TennisGreg profile image
12 Replies

Hi there, I was diagnosed in 2018 at age 46. I’m on WW as the disease is progressing slowly. However, I do have a problem recovering from mosquito bites. I still itch from bites I got a few months ago. Does anyone know how to deal with over-reactions to mosquito bites?

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TennisGreg profile image
TennisGreg
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12 Replies
clemens profile image
clemens

I have the similar overreaction with big blisters, especially at my feet and from Moskitos in Greece. Knowing that I do Overprevention when in Greece. A heat stick seems to help if I find the bite right away, which I usually don’t.

BeckyLUSA profile image
BeckyLUSA

Don’t know where you are located geographically, but have you tried “Afterbite”? It is a small pen like tube with a roller ball that you roll over the bite. It has worked better for me than anything else. Also “Cortizone 10” works well too, also a roll on.

TennisGreg profile image
TennisGreg in reply toBeckyLUSA

That’s helpful. My kids use Afterbite, so I’ll try it myself. Did you consult a dermatologist on solutions for this?

BeckyLUSA profile image
BeckyLUSA in reply toTennisGreg

No, because once I started treatment on Ibrutinib and Venetoclax, mosquitoes do not like my blood anymore!

TennisGreg profile image
TennisGreg in reply toBeckyLUSA

Oh that’s a positive side effect of treatment! I’m like a dessert table for bugs. I’m fearful of next spring when the bugs are back.

In the interim, I’ll see if my dermatologist has any ideas.

BeckyLUSA profile image
BeckyLUSA in reply toTennisGreg

Yeah, a very expensive mosquito repellent!

Jm954 profile image
Jm954Administrator

I have the same problem and I scratch them in my sleep so the bed sheets get covered in blood.

I now take a proactive defensive approach of trying not to be bitten in the first place so I always have an insect repellent with me and I use a strong one with 50% DDT!

Sadly they still bite me through my clothes and I end up spraying everywhere to be sure. People have commented on my 'perfume'! Not great but it saves months of misery.

Jackie

cllady01 profile image
cllady01Former Volunteer in reply toJm954

Jackie, do you mean DDT or DEET? DDT is banned in US, but maybe not elsewhere.

Jm954 profile image
Jm954Administrator in reply tocllady01

Oh, I don’t know now, I’ll check in the mornings no, in bed here!

thompsonellen profile image
thompsonellen

I'm in the same position. Just scratching bites from August last night. I haven't found any perfect solutions, but I do use bug spray almost all the time. Unfortunately, most of them got me in my apartment some how. I don't even open my windows, but they found their way to the third floor anyway.

kathymac52 profile image
kathymac52

Don't know why some of us are so attractive to this buggers.....but I am...I think I run hotter than most....always bit before anyone else....sigh

NaturalWaze profile image
NaturalWaze

I get a horrible reaction around my feet and ankles from bugs. The only thing that helps me is a prescription ointment I got from the dermatologist. I believe it is a cortisone. I use it at the first sign of a reaction. None of the over the counter after bite products or any-itch creams ever worked for me.

There have been lots of threads on this forum about bug bites, so you may want to do a search to see other suggestions. Apparently people with CLL are more susceptible to extreme reactions to bites. (Lucky us!)

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