Cytokine storm effects on your body: If you're... - CLL Support

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Cytokine storm effects on your body

Jm954 profile image
Jm954Administrator
9 Replies

If you're unlucky enough to suffer this extreme reaction by your body to COVID-19 then these are all the systems that can be affected.

The damage can lead to a long period of recovery and perhaps Long COVID syndrome.

Jackie

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Jm954
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stewie profile image
stewie

Hi Jackie Interesting , thanks for posting , to lighten the mood I was going to do a monty python sketch... life of Brian ...yeah but what else can the cytokines do to us .......,,,,.

Be safe

Stewie

Jm954 profile image
Jm954Administrator in reply tostewie

We need something to cheer us up!

Splash24 profile image
Splash24

Here is a link to a study that has begun at the Medical University of South Carolina. Dr. Hollis has suggested before that Vitamin D can play a role in limiting the Cytokine storm, this is not a suggestion that Vitamin D can prevent Covid, but rather might limit the severity.web.musc.edu/about/leadersh...

Jm954 profile image
Jm954Administrator in reply toSplash24

Yes and apparently the UK government is going to send out vitamin D to all those that need it. Not sure how they know who does and doesn't but at least they are trying!

Newdawn profile image
NewdawnAdministrator in reply toJm954

You need to opt into the scheme to receive the 4 month supply of Vit D Jackie. The Govt. are not actually sending it out. The details are contained here;

gov.uk/government/publicati...

Newdawn

Jm954 profile image
Jm954Administrator in reply toNewdawn

Thanks for the information Newdawn 😊

bennevisplace profile image
bennevisplace in reply toJm954

Too late to opt in I'm afraid, but the scheme provides only ~120 x 400 IU and I would use that much in 3 weeks.

bennevisplace profile image
bennevisplace

Although it was made early in the pndemic I quite like the NInja Nerd presentation on youtube because it builds the story in stages. It is a horror story though. youtube.com/watch?v=YRfwZcL... For the pathology only, skip the first 20 mins or so.

Sadly we know a lot about this. My OH, who has CLL, got Covid early on, at the end of March. He suffered almost every possible complication:- 4 strokes, resulting in paralysis of tongue and throat, was unable to speak, eat or drink, so was fed by gastric tube for over 4 months. The strokes have also affected his vision, his recall, and his sense of direction.

- he spent 2 months in ICU, including 2 weeks in an induced coma, another 4 weeks on a ventilator, also had a tracheostomy

- pulmonary embolism

- kidney failure

- heart failure

- persistent diarrhoea (ongoing)

He then spent 4 months in residential Rehab, and then 3 months going 3x week to a local centre, and was signed out just before Christmas. However, this has been life-changing for us both, and it is unlikely he will make a 100% recovery. We've had retirement thrust upon us, which we had neither planned for nor budgeted for. We used to run a B&B (now up for sale), and worked as ski instructors in Andorra through the winter.

He still has lots of follow-up consultations, but he is gaining weight and strength - he did a 45km cycle ride last week, with no ill-effects - we've been gradually increasing the distance.

We live in France, and he has had the most amazing care - from the beginning, when it still such an unknown, and the care is continuing now.

When I read this, I wonder how we survived, particularly the first 2 months, when he was in ICU, and visits were not permitted - but you just get up every day and keep going. But it has been tough.

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