Treatment time... today!: Today I head to the... - CLL Support

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Treatment time... today!

NaturalWaze profile image
26 Replies

Today I head to the hospital for 3-6 days to receive my first treatment of Obinutuzimab (Gazyva). You may remember I was struggling with the treatment decision. I decided on Obino and Venetoclax, which will be started in a couple of weeks. Dr Lamanna likes the first infusion to be in the hospital, where she can monitor for TLS and hydrate me like crazy.

Lots of emotions happening, but I know I’m in excellent hands.

All prayers welcome!

I’ll update as I can.

By the way, had bone marrow biopsy last week and barely felt a thing. And they played my favorite music on Pandora and it really lightened the mood.

But - had Covid swab yesterday and yowza that was painful (not to scare anyone).

Best to all,

NW

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NaturalWaze profile image
NaturalWaze
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26 Replies
Jacksc06 profile image
Jacksc06

Hi Sending best wishes and positive thoughts.

NaturalWaze profile image
NaturalWaze in reply to Jacksc06

Thanks! I’m so glad you are not working now!

Jacksc06 profile image
Jacksc06 in reply to NaturalWaze

Thank you. Me too!!

nanasu profile image
nanasu

Best of luck. Hope it all goes well for you. Take care

HopeME profile image
HopeME

Hi NW

It is always concerning when heading to the hospital for a treatment but I can tell you from experience that receiving an infusion is anticlimactic. You will do fine. You have an outstanding doctor and are receiving cutting edge treatment. Since you are mutated, relatively young and are receiving O/V frontline my guess is you are in for a long remission. Stay positive and you will be out of the hospital before you know it.

Best

Mark

NaturalWaze profile image
NaturalWaze in reply to HopeME

Thanks, Mark! I’ll take anticlimactic for this, for sure!! 🙏🏼🙏🏼🙏🏼

Good luck NW! I’ve finished my Gazyva injections for month one and they were just fine. I had a reaction immediately, but thanks to the advice on here I fully expected for something to happen. I told the nurse immediately and they paused the infusion. I started again about an hour later and it’s been smooth sailing since then. Better to be in hospital where they can monitor you, and I’ll be praying everything goes smoothly for you! 🤞🏻🙏

NaturalWaze profile image
NaturalWaze

Awesome! Thank you!! That helps!

Sushibruno profile image
Sushibruno

NW as we all know the anticipation is always worse then the outcome. Just remember that dr. Lamanna is going to take very good care of you. Keep in touch and keep us updated as much as possible I will be praying and thinking about you the whole time. 🙂👍👍👍.

Newdawn profile image
NewdawnAdministrator

I’m sure you’ll be absolutely fine! 😊

Best wishes,

Newdawn

GMa27 profile image
GMa27

I too had my first cycle of chemo at the hospital. It was so comforting knowing I would have 24/7 care. Everything went great. Loved my IV Benadryl !

I had 3 BMB and felt nothing. So glad your experience was positive.

I don't know if u have a port- loved saving my veins and hands free. Can add one if you want. Easy procedure.

Wishing you a smooth journey! 🙏💕

NaturalWaze profile image
NaturalWaze in reply to GMa27

Thank you, GM! I do not have a port. They asked me if I wanted one, but not really knowing about it, I said no. I can always change my mind and get one, though. I’ll ask!

Canuck901 profile image
Canuck901

All the best , That’s a fantastic combo , cheers to a durable remission and a smooth treatment process .

LovelyLilyGirl profile image
LovelyLilyGirl

Best of luck to you. It is unnerving doing something like this but for my nine infusions I had between March and July, it was smooth sailing. I too had a slight allergic reaction with the first infusion but as other people have said, they stopped mine, gave me IV Benadryl, which was wonderful, and it was all went well afterwards.

-Sally

Ghounds profile image
Ghounds

Praying all will go well for you.

MystyUK profile image
MystyUK

Good luck, hoping everything goes brilliantly🙏

very profile image
very

Sending you best wishes for your traatment journey.

jenny uk

ClassyLady3 profile image
ClassyLady3

Praying 🙏 as you asked 💕

Mprm profile image
Mprm

Hope this marks the beginning of an uneventful journey! Love your positive attitude!

Smakwater profile image
Smakwater

NaturalWaze,

Just from one sentence I know that I like you already, - "Lots of emotions happening, but I know I’m in excellent hands."

Here is a link to some get ready to feel better music.

youtu.be/bCE34d-gzgo

Prayers for you from Proverbs 16:3 - Commit your plans...

JM

NaturalWaze profile image
NaturalWaze in reply to Smakwater

Thank you, JM!!! For prayers, and that music! My hospital room was just moving and shaking with that jazz! Fun!

country76 profile image
country76

Not sure if true however I read that the swab has to be inserted 1/2". I am wondering if some nurses are too vigorous.

Youngen profile image
Youngen

Good luck!!! 🍀

Reddevil1 profile image
Reddevil1

Sending much love from Bolton.

Fastbike14 profile image
Fastbike14

All the best for you treatment

AnneHill profile image
AnneHill

Good luck. I hope its all going well. Be great if your biggest worry is having a book to read. Anne uk

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