Like others have written, it is time for my treatment, and the decision on which to choose is incredibly challenging!
I’ve been on W&W for 3 1/2 years. Trisomy 12, mutated. More symptoms lately: slight shortness of breath, nausea (likely due to larger lymph node in abdominal cavity), enlarged lymph nodes on neck (had PET scan, needle then tissue biopsies... luckily all CLL, but some larger cells that she will continue to watch). Lowering hemoglobins (although last visit, numbers went back up). WBC around 70k. Dr Lamanna is my CLL specialist and I love and trust her. She is seeing me every 30 days now.
The treatments I am deciding between are: Venetoclax/Obinutuzumab combo - 12 month.
Bendamustine/Rituximab and Venetoclax/Rituximab 16 month trial.
Both treatment options begin with a hospital stay. A little afraid of Covid but hospital numbers are down. And she will closely monitor me for TLS.
Another option was BTK inhibitors (Ibrutinib) but I am leaning away from this, and leaning toward more aggressive, time constrained treatment.
I am nearly 61 and still working, and would like to consider an option where I will be able to function well while on treatment. I will request Intermittent FMLA (family medical leave) from work for any time off here and there I may potentially need.
So that’s the details; hopefully I got it all in!
I am scared, as I have read here from many others, but want to be as well-informed as possible and make the smartest choice for myself. I would love feedback from your experiences.
In health -