Is anyone on Duvelisib?

[Aliona06]

Is anyone on Duvelisib? Can you, please share your experience. Unfortunately my father’s Venclexta + Rituxan treatment is not working anymore. The doctor is saying that Duvelisib is his only option now. Thank you.

[Smith123456]

might be time for reduced intensity stem cell transplant

[Aliona06 in reply to Smith123456]

Dr is saying that he is too sick for the transplant. Did not mention the reduced intensity one, I'll definitely question him about it. Thank you.

[cllady01 Former Volunteer]

Aliona06. Here is a posting by Jm954 listing an article of interest to your father's situation.

healthunlocked.com/cllsuppo...

[Aliona06 in reply to cllady01]

Yes, I saw it, thank you. I searched everywhere on the internet for any Duvelisib patient's stories, experiences and I'm very surprised how little there is. I guess I'm looking for some reassurance. Knowing how potent this medication is and how serious side effects are, I was hoping for someone to say that it does its job and it keeps them alive. It's been approved for over two years now, but almost no patient's reviews available.

[Smith123456 in reply to Aliona06]

blog.dana-farber.org/insigh...

[Aliona06 in reply to Smith123456]

Thank you!

[Smith123456 in reply to Aliona06]

how about loxo-305

[Aliona06 in reply to Smith123456]

Thank you, we’ll bring it up to the doctor. I wish there’s one in Los Angeles, the closest hospital where this trial is being done is in San Francisco.

[Billhere]

Please take a few minutes to visit CLLsociety.org

A lot of videos and information on each of the drugs.

There are a lot of options out there still and just because he’s not responsive to one thing or one combination does not mean you should lose hope for a good outcome.

I’m always heartened to see children’s, spouses out there looking for solutions.

[Aliona06 in reply to Billhere]

Thank you, Billhere