Webinar on CLL treatment - a Changing Landscape - CLL Support

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Webinar on CLL treatment - a Changing Landscape

Jm954 profile image
Jm954Administrator
12 Replies

CLL treatment - a changing landscape

When: Jun 29, 2020 11:00 AM

You are invited to join us for a webinar by our sister charity Leukaemia Care on chronic lymphocytic leukaemia (CLL) treatment.

Register your attendance via Zoom here

us02web.zoom.us/webinar/reg...

We will be joined by:

Professor Anna Schuh, consultant haematologist, Chair of the NCRi CLL clinical research group and Director of Molecular Diagnostics at Oxford University.

Dr David Allsup, Senior Lecturer in Haematology and CLL lead at Queens Centre for Oncology and Haematology at Castle Hill Hospital, Hull.

Helen Knight, CLL Nurse Specialist at Nottingham University Hospital.

The panel will discuss and answer your questions about how CLL is treated and how care is provided today; what is expected moving forward as lock-down is lifted; clinical trials; trials restart and new treatments becoming available.

Make a note in your diary now!

Jackie

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Jm954
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12 Replies
Psmithuk profile image
Psmithuk

Do we need to register, Jackie?

Jm954 profile image
Jm954Administrator in reply to Psmithuk

Yes,

although the recording will be available I'm sure and posted on this site.

Jackie

Psmithuk profile image
Psmithuk in reply to Jm954

Thank you. I have now registered.

Peggy4 profile image
Peggy4

As always, I hope to catch up with this (sometimes difficult at the actual time with face times etc...)

I find these webinars incredibly informative and helpful.

Peggy 😀

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Will this be archived? I would like to be able to hear what is said, but the time doesn't work for those of us in California.

Jm954 profile image
Jm954Administrator in reply to MsLockYourPosts

the recording will be available to everyone I'm sure and posted on this site.

Jackie

gohmei profile image
gohmei

How do i access the recording?

Jm954 profile image
Jm954Administrator in reply to gohmei

I’m not aware that it’s available yet. We’ll post it on the site on a new post.

Jackie

mrsjsmith profile image
mrsjsmith in reply to Jm954

I found it interesting and informative. The best I have seen so far.

Canuck901 profile image
Canuck901

Keep me posted

amaagabg2020 profile image
amaagabg2020

I just completed my 6 cycles of RCVP chemotherapy for CLL. Each time i went to hospital for administration of chemo there was increase in size of my spleen and abdominal lymph nodes after they had subsided just after 2 or 3 days chemo administration. my doctors are considering another treatment option for. what is your suggestion on my treatment option?

Also what is the current recommendation of scientists for CLL patients to receive CRISPR/cas9 gene editing treatment. Looking forward to hearing from you.

AussieNeil profile image
AussieNeilAdministrator in reply to amaagabg2020

R-CVP (rituximab, cyclophosphamide, vincristine and prednisone) is not a usual treatment for CLL. Was this given because you had an atypical CLL presentation? (This could influence your next treatment choice).

CRISPR/cas9 gene editing treatment is experimental and you would need to know the specific DNA error needing correcting and a way to only target that mutation location in just CLL cells. With the huge range of possible DNA errors involved in causing healthy B-lymphocytes to become cancerous CLL cells, I wouldn't think CLL would be a high priority target for such research.

Neil

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