cratio

[gustave]

Hi

I was told probably CLL and then then did the flow cymotry tests and my GP says he doesn't understand them. Do we have anyone who can take a look at my results. I also have high platelets

[cllady01 Former Volunteer]

gustave, we cannot diagnose. We have looked at others test reports and can assist in some cases by suggesting something.

The thing I think is important for you to do is to ask to be seen by a hematologist, if that hasn't already been arranged.

I suspect that might be the next step that may be being arranged by your GP—so I would, were I you and know what I know now, call the GP's office and ask to have more information about what is next.

That could set your mind at ease that there is more information to come. If there is not a plan to refer you or to at least have your bloodwork results seen by a hematologist who knows CLL, has other CLL patients, it would be most prudent for you to ask for that to be done.

Best wishes and please let us know what is being followed up on.

[gustave in reply to cllady01]

Yes just referred to a hematologist today.

[cllady01 Former Volunteer in reply to gustave]

So, gustave, I understand your wanting to know and we have each of us had to go through some waiting to get a diagnosis. Even some hematologists seem to have a bit of problem in the beginning stages with getting the tests done that need to delineate the specifics of CLL to make the diagnosis. You will be a bit ahead of the game if your PC has done the tests already, so when you see the Hematologist, there will already be some information.

Patience is called for in this time--I hope you are feeling well and the wait won't be very long for you.

Best wishes, and do keep us updated.

[gustave in reply to cllady01]

Why would my platlets be high with CLL?

[cllady01 Former Volunteer in reply to gustave]

It is not a usual finding, gustave--the fact that your GP said he didn't understand the blood results may be that very factor. It is not easy for one who does not know about CLL to the extent a knowledgeable Hematologist does to know the difference in blood cancers.

Often the GP/PC's get ahead of their skis and talk before they have the needed info to be definitive with a diagnosis.

There are several leukemias that have to be ruled out when testing.

The following link tells about high platelet conditions.

healthgrades.com/right-care...

[Jm954 Administrator]

Hi gustave,

please let us know what your doctors say

Jackie

[caven]

Hold on tightly to a GP who admits they 'don't know' something. That level of honesty is to be cultivated and celebrated. The key is to have them re-route you to a CLL-specialist (preferably a hematologist rather than an oncologist).

Caven

[lankisterguy Volunteer]

Hi gustave,

The replies so far are excellent advice.

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While you wait for the hematologist appointment, you may want to read these * items from the " Pinned Posts

-Comparison of between Covid-19, a Cold, the Flu, Hay Fever and Asthma plus other Coronavirus updates

*12 TIPS to get more out of this CLL Support forum - and help others do the same. healthunlocked.com/cllsuppo....

-Good article on navigating complementary cancer treatments

*An Overall view of CLL in the diagnosis stage, biomarkers, testing healthunlocked.com/cllsuppo...

*Newly diagnosed with CLL or just found us? This post is for you! healthunlocked.com/cllsuppo... "

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The links for those articles are in blue above or in a box on this page- right column on computer screens, scroll way below on tablets or cell phones.

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Len