Recently diagnosed with CLL and was wondering ... - CLL Support

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Recently diagnosed with CLL and was wondering if I can still have massage and manicure/ pedicure.

1234098 profile image
20 Replies

Hi

I have no symptoms as yet but spleen is enlarged and have few lymph nodes in my neck .

Thank you for your time

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1234098 profile image
1234098
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20 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

Provided you take precautions to minimise your risk of infection and your providers take the appropriate precautions, which they should do anyway, you should be fine. See:

healthunlocked.com/cllsuppo...

Neil

1234098 profile image
1234098 in reply toAussieNeil

Thank you

1234098 profile image
1234098

Thank you

annabelle63 profile image
annabelle63

I have been for years. Go to reputable spas

GMa27 profile image
GMa27

Yes....was on W&W for 12 years. Enjoy

Ironj profile image
Ironj

I get a massage every week after my chiropractor.

I’ve never gave it a thought if a massage was good or bad.

Onmytime profile image
Onmytime

I’m one that experienced an enlarged spleen and lymph nodes (and my CBC was somewhat stable). Had no real symptoms for 5 years. I told my massage therapist about my spleen and they worked around it.

blowinginthewind profile image
blowinginthewind

I do have them, but I got permission from haematologist in writing first. And I am very careful about it, as is the masseuse and podiatrist doing pedicure.

kitchengardener2 profile image
kitchengardener2

I asked my CNS about these things because I was concerned about colouring my hair, something I have done for years. She said that so long as hygiene was good there was no problem. I only paint my nails for high days and holidays since gardening and nail varnish don't mix but I dare not think what my natural hair colour is! Stay safe

ksteinberglewis profile image
ksteinberglewis in reply tokitchengardener2

I was told to make sure I wear gloves when I garden because of potential bacteria

kitchengardener2 profile image
kitchengardener2 in reply toksteinberglewis

I always wear gloves when in the garden or more importantly when feeding birds or cleaning feeders. CLL patients are more prone to infections and birds carry campylobacter. I was told that I must avoid bird poo after I was extremely ill pre diagnosis. We should also wear masks when working with compost. My nails still suffer even with gloves. My hands are subjected to a real scrubbing session with really hot water when I have finished in the garden. Always surprised when watching television gardener's lack of gloves.

virdieblue profile image
virdieblue in reply toksteinberglewis

This summer I picked up a fungus infection in the garden. Fewer meds to treat this. I have spent a month and a half trying to arrange for treatment. My infectious disease doctor says - long sleeves, long pants, mask, gloves...

Virginia

Vlaminck profile image
Vlaminck in reply toksteinberglewis

Wow, I wasn't given any such cautions (on W&W) and I get my hands in the dirt all the time. I am taking no precautions but for Covid. Plus I have an OLD cat, with kitty litter issues every day, three dogs who are always getting some level of spit on me, and a parrot. Wouldn't even think to worry about manicures but don't get them as they bore me too much, unless for special occasion.

ksteinberglewis profile image
ksteinberglewis in reply toVlaminck

I never gave gardening a second thought either. I went to a LLS conference they had in Ft Lauderdale several years ago and one of the speakers talked about wearing gloves when gardening and I have been doing that since then. I probably would wear the throw away gloves the doctors use with changing cat litter too. Since covid, I see everything as a Petri dish.

AussieNeil profile image
AussieNeilPartnerAdministrator in reply toksteinberglewis

To garden safely when you have CLL, particularly if you are likely to be neutropenic, you need to wear gloves that are tough enough to prevent cuts, scratches and puncture wounds. Cellulitis from a skin infection is painful and puts you at risk of sepsis, which can be fairly quickly fatal without prompt access to IV antibiotics.

Neil

JeannineMarie profile image
JeannineMarie

Hi, I get my finger nails done every 2 weeks, pedi every 4 weeks. Even when going through B+R I saw my nail tech. She was aware of my health and was extremely aware of sanitizing diligently.

ksteinberglewis profile image
ksteinberglewis

I don’t do anything I really don’t have to. I don’t expose myself for pedicure. I have had an enlarged spleen. It did go down on its own without medication but it is something to watch. I just don’t trust my immune system but I am more cautious than anyone one I know. You have to be comfortable with what you do. Stay safe

wizzard166 profile image
wizzard166

Hey 1234098

Of course you can get a Massage and manicure and pedicure.

I've been going monthly to a spa near me in South Florida, and it improves me. You don't have to worry about their slight pressures, and it is advisable to let the therapist know about your CLL.

Enjoy

Carl

Dahlia7 profile image
Dahlia7

COVID would be my only concern.

Msupsych profile image
Msupsych

Gosh I hope so! I'm newly diagnosed and W&W. I'm making special effort to start doing more for myself, including adding extra spa days and monthly massage and pedicures. I used to work in a stem cell transplant unit and with LL patients (ironic, I know!) - our warnings given to patients focused on neutropenia risks (soil included). Until counts are significant, neutropenia is not a risk. When neutropenia is a real risk, then behaviors need to change appropriately. So with that - I'm all about "self-care!" ;)

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