Richter's transformation.: Hello everyone. Been... - CLL Support

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Richter's transformation.

Priss69 profile image
17 Replies

Hello everyone.

Been a little out of the way this month. The news of Dave's death left me very emotionally ill. I got to know him and currently I still don't understand his sudden death.

I want to update my health status. As you know with the coronavirus problem they have canceled all visits. My doctor called me on the phone and made the phone consultation. He told me that my small ganglion in my neck measuring 4X3 millimeters could be from an infection. I have a cavity in a tooth. I cannot go to the dentist because it is currently closed.

Currently there are no lymph nodes in my neck, nor in my armpits or English. As you know I have a Ricthert transformation and I was treated with the R-CHOP. I continue with controls every three months. The next consultation is in August. Next month I have MRI exams to see my breasts. As you know, I was detected cancer of both breasts last year. I am being treated with hormonal therapy and I am praying to control the four cancers that I currently have in remission.

I hope you are all well. We have to support each other, despite the losses we have as our partner Dave.

A big hug to everyone and a kiss to heaven Dave.

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Priss69 profile image
Priss69
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17 Replies
Justasheet1 profile image
Justasheet1

🙏🏻❤️

A whole lot on your plate Priss, support from here for sure. Big hugs and warm wishes.

PlanetaryKim profile image
PlanetaryKim

Good luck to you Priss! ❤️

mrsjsmith profile image
mrsjsmith

Priss wishing you well.

Colette x

bachplayer13 profile image
bachplayer13

was that your partner boy friend that had ricther's ? i pray for your healing and spiritual healing during this tragic loss!

Priss69 profile image
Priss69 in reply to bachplayer13

This man was not my boyfriend, he was my friend. Dave was my friend and he didn't have Ricthert. He had a diffuse B-cell lymphoma. Dave was happily married to a beautiful son.

Cheers

leilei profile image
leilei

Thanks Priss for this update, hope you got everything in control, stay strong.

trenaleigh profile image
trenaleigh

Please stay strong. I’m thinking of you 🙏.

pati23 profile image
pati23

Hi Prissa69

Similarly the lump i had under my chin( sub mandibular node), which caused great panic , me and doctors< has turned out to be CLL and infection.

It responded to my antibiotics for my sinus infection, reduced it in size.

i too had an idea it was a breech in my heavily filled tooth, and am awaiting the dentist to open, cleaning ++, and swishing with salt water, to prevent anything else happening

i hope you get all your current problems resolved

best wishes

Pat

Priss69 profile image
Priss69 in reply to pati23

200/5000

Hi.

The ganglion has not grown any longer and remained that size. I have to go to the dentist but I have panic for the Covid-19. Here not everyone takes action against the virus. Are you okay now

Smakwater profile image
Smakwater

This is all very frustrating for you not being able to get personalized care, as well as dealing with Covid19 isolation and the loss of Dave.

I wish better for you and everyone.

JM

Priss69 profile image
Priss69 in reply to Smakwater

With Dave I have my suspicions that it was not pneumonia and if the coronavirus. It was never tested for Coronavirus. I had all the symptoms of having the Covid. The doctors never wanted to do the tests because she did not have a fever. If he had tested three weeks ago, Dave would be alive now.

Mystic75 profile image
Mystic75

Priss, thank you for the update. I can only imagine how hard this has been on you. I am so grateful for all you did for Dave but I know it comes at an emotional cost. This is all so hard.

💕🙏💖

D.

Poodle2 profile image
Poodle2

You have been through a lot, unimaginable. Stay strong and positive. X

thompsonellen profile image
thompsonellen

Stay strong! Hoping that MRI is clear.

Catstwo profile image
Catstwo

Hey Priss69, I too was very sad about Dave he seem so nice. I was hoping he was on the mend, and to hear him passing was heartbreaking. I know you are grieving just know he would want us to remember him, but go and live our life the best we can with joy and helping others. I know it hard to lose a friend and we are here for you. Keep keeping on!!!!

Brenda

Priss69 profile image
Priss69 in reply to Catstwo

Thank you. While I was writing privately to the people in this group, Dave asked for the phone before he died to send me a message and let me know that he was in the ICU. His son and his wife told me that minutes later he fell into a coma and died. This has left me very shocked. The last month we sent messages almost daily and the last week were three and four messages per day. Opening my email waiting for an email from him is very hard. The rage I have is that he has not died of his disease. He died of a pneumonia that could have been treated, but the doctors, since they did not have a fever, did not want to do tests. This is not what I say, if not what Dave told me. Dave kept telling me over and over that the doctors refused to do tests. I am so angry ...

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