imbruvica

[brooklyn7672]

How long has anyone been on Imbruvica and how are you feeling.

[fapumpkin]

I have been on Ibrutinib for 4 years in June, my bloods are “normal” & I feel well.

[Dom57]

Been on it for 40 months and all blood normal and feel great.

[Ellieoak]

I was on Imbruvica for five yrs. before it stopped working. Now am on Venteclax for 1 1/2yrs. Anna

[Jm954 Administrator in reply to Ellieoak]

How did your relapse become apparent Anna? Did your lymphs rise and/or your lymph nodes start to enlarge?

Jackie

[Ellieoak in reply to Jm954]

No lymph problems. My WBC started to go up.

[Jm954 Administrator in reply to Ellieoak]

Many thanks, all the best with venetoclax

Jackie

[annmcgowan]

Hi been on ibrutinib for 2 years, bloods normal and feel great.

Ann

[BluMts]

I've been on IB for over 3 years. I've had a lot of side effects which have got less and less troublesome. But I do have a couple of effects that I'd rather not cope with. Had conversations with my CLL consultant and when Aclabrutinib is licensed here, I'll move to that and let's hope get on better.

My first half year or so was quite difficult but I'm now generally feeling really OK. and consider myself extremely extremely lucky to have been able to have IB as first line treatment. My blood results are good after 3 years on IB. I do get tired and need to take care of myself.. rest, good food, exercise, good sleep.

[Rt2000]

3 years. Feel good. No problems. Very happy with results.

[CLLCalifornia-USA]

Three wonderful years. No complaints thus far. All labs are in normal range and I’m very active. Good luck. Sally

[hhk50]

Two years this coming August. Normal bloods and I feel great. I've been through some rough patches of side effects but nothing recently.