Treatment continues and lymph nodes responding... - CLL Support

CLL Support

23,335 members40,039 posts

Treatment continues and lymph nodes responding-amazingly!

Loveroflife profile image
9 Replies

Hi guys just an update. I have have my third infusion but really only finished my second full dosage of Obinutuzumab as the first vial is split into 2 days. So far I have had no side effects other than a mild headache every now and then. I have been able to come home do yoga, cook, laundry etc without any letting up!!! My energy levels are great.

My lymph nodes which were the reason I had started treatment have gone down considerably almost immediately! I can put my hair up and move with no impediment. Prior to treatment my arms could not fully extend as the nodes under my arms were very swollen and my neck extended out past my ears. To look at me now you would not notice anything was swollen at all. I can still see a little bit of swelling and I can feel them in my neck but only where they had really gotten bad. I’m wondering if there is scar tissue that will never go back to normal.

My bloods are all normal, but they were normal before treatment as well so that may not be helpful for any of you who are wondering about your numbers.

I’ll keep you all posted! Stay safe everyone! I hope each day this treatment will allow me a long remission 5-8 years if it does, then this whole thing seems very manageable. Fingers Crossed.

Written by
Loveroflife profile image
Loveroflife
To view profiles and participate in discussions please or .
Read more about...
9 Replies
ygtgo profile image
ygtgo

Fingers crossed ... thumbs up !

LovelyLilyGirl profile image
LovelyLilyGirl

Wonderful! We must be on a similar timeline. I have had three infusions, the first two broken up in two days. I have noticed my lymph nodes shrinking although they were not that big. I have my fourth infusion tomorrow. My white blood count dropped to normal range. It’s amazing.

I wish you best of luck on this similar path we are on.

Sally

Loveroflife profile image
Loveroflife in reply toLovelyLilyGirl

Good luck with your treatment!! Nice to have some company. Keep me posted.

PlanetaryKim profile image
PlanetaryKim

Congrats on the great results so far!

Sushibruno profile image
Sushibruno

Im happy for you congrats😎

WinJ3 profile image
WinJ3

🤞🏻🤞🏽Fingers crossed! Good luck!

Win

Sepsur profile image
Sepsur

🤞🏻

Psmithuk profile image
Psmithuk

Hope it continues for longer than you expect! Nothing like a bit of good news to lift h mood!

Smakwater profile image
Smakwater

Good Show Loveroflife,

Jm

Not what you're looking for?

You may also like...

O & V treatment and lymph nodes

Please can someone who has CLL and swollen neck nodes tell me how long into treatment with Gazyva...
Gradyboy profile image

Enlarged under arm lymph nodes during treatment

Just wondering if anyone on V & O has experienced continued bulky under arm Lymph nodes during...
fezzerUK profile image

More swollen lymph nodes

hi folks I am at stage B and already had swollen nodes on my neck and groin when diagnosed. I did...
Jamie_james profile image

lymph nodes and ear ache

Hello everyone. I haven't posted in a while But I need the wisdom of your experience. Here's my...
DMary profile image

Pain in lymph nodes..normal?

just wondering~has anyone experienced pain in the lymph nodes in groin area?? They are not very...
Nettiehudson profile image

Moderation team

See all
CLLerinOz profile image
CLLerinOzAdministrator
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.