Cll and ibrutinib complications

[sweetromeet]

My dad is cll patient and had 2 round of chemos.He is on ibrutinib now.After taking for 8 days,had to discontinue due to internal bleeding in leg.Again started after 10 days gap with reduced dose of 1 tablet instead of 3.now again on the 10th day ,theres a blood clot on the hand.Please suggest.Also can he take vitamin c tablets during this?

[Yuck]

Hi!

I am wondering if you are able to send your photos (arm, hand, what you are calling a clot) and all your questions to his medical team.

Good luck!

~ Yuck

[sweetromeet in reply to Yuck]

Due to corona,tgs are difficult in India.Everytg shut dwn

[cllady01 Former Volunteer]

Depending on your country, there is the possibility of Venetoclax, However, there are places that do not yet administer Venetoclax. What does your Dr. say?

My understanding of vitamin C is that it breaks down the capillaries and can lead to internal bleeding. Ibrutinib itself can cause internal bleeding. Please talk with your CLL hematologist/oncologist and ask your questions. Call the office, if you can't talk to the Dr. ask to have his RN/NP to call, if you have that possibility.

Let us know how things go. We are here to support you and your father.

If you tell us more, you need to know that an unlocked post and all replies to it are visible on the internet, so you may or may not get replies to an open post from people who want to share personal info.

[Big_Dee]

Hello sweetromeet

cllcanada quoted a doctor who said vit C causes increase in CLL patients lymphocytes count which is the opposite of what CLL patients need. I tried to research post, but AussieNeil may be able to find it. Blessings.

[sweetromeet]

Thanks a lot for ur effort