Hand therapy that works!: I’ve been on... - CLL Support

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Hand therapy that works!

Mprm profile image
Mprm
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I’ve been on Ibrutinib for a little over two months and, happily, it’s doing what it’s supposed to do. My ALC has gone from 243,000 to 150,000, platelets bouncing up and down, hemoglobin down, now slowly rising. So far the only side effect that has really bothered me, especially with all of the hand washing, is wrinkled, dry, and cracking fingertips. I tried soaking in olive oil, then coconut oil—slather on before bed and put on cotton gloves. Neither of those was terribly effective. For years I’ve been using cocoa butter to remove eye makeup, so I tried that on my hands with the cotton gloves. After several nights my fingertips are plump again and the annoying splits are healing. Just wanted to share this success story with other Ibrutinib users out there. Best thing is the stuff is inexpensive.

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Mprm
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Sepsur profile image
Sepsur

For anyone with eczema - health care professionals say you can use your emollient cream as a soap.

country76 profile image
country76

Thank you for the hint. I have been using Jojoba oil on fingers nails, heels and toes. Also use hand lotion after every washing.

pigeonCl-HU profile image
pigeonCl-HU

Thank you Mprm, I have also tried what you have mentioned, with medium success. Never used cocoa butter on its own, except in some lotions.

Didn't know it was ok for removing eye make up; but as they say, 'you live and learn'.

Is you cocoa butter organic? Could you kindly share its name?

There are so many on he market, I am sure some are better then others, and the one you're using obviously works!

Many thanks,

pigeon.

Mprm profile image
Mprm in reply topigeonCl-HU

I use Palmer’s, the one with vitamin e, which has other ingredients and I don’t think is organic. I have a jar of 100% cocoa butter, but it remains very hard in my New England winter so haven’t used it since starting Ibrutinib. The Palmer’s comes in a pot and is very thick. You have to warm it in your hands first to get it to melt to a consistency to rub in. I’ve used it for years to remove my favorite waterproof mascara and avoid more drying liquids.

pigeonCl-HU profile image
pigeonCl-HU

Palmer's, of course....me and my brain fog....

Thank you Mprm, take care,

pigeon.

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