New group for Richter’s Syndrome: Hello friends... - CLL Support

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New group for Richter’s Syndrome

Priss69 profile image
12 Replies

Hello friends.

I made a Facebook group about the Ricther Transformation. The idea is that only patients with this serious complication and hematologists enter. At the moment we are 10 people in two hours that makes it open. The idea is to be able to exchange treatments between patients and doctors.

The group is called Richter’s Transformation. Search it on Facebook.

There is a patient who has been with Ricther for 12 years and is still alive. If you can't find it, contact me and I'll pass you the link.

Greetings

facebook.com/groups/1002255...

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Priss69 profile image
Priss69
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12 Replies
PlanetaryKim profile image
PlanetaryKim

Good job! I am sure that will be useful to people who undergo Richter's Transformation and need an information group for it.

Here is the link to the new FB group: facebook.com/groups/1002255...

Priss69 profile image
Priss69 in reply to PlanetaryKim

That's what it's all about, being in communication all the Ricthers together. People who have Ricther feel like they are stinking. It is very difficult to find a Ricther and you feel very alone.

Priss69 profile image
Priss69 in reply to PlanetaryKim

As you put the Link, it doesn't let me put it on.

PlanetaryKim profile image
PlanetaryKim in reply to Priss69

Does the link not work for you? It works for me to get me to your FB group.

Priss69 profile image
Priss69 in reply to PlanetaryKim

Yes, I can see it, but it doesn't let me put it on and I don't know why. I want to put it in my comment and it doesn't let me.

PlanetaryKim profile image
PlanetaryKim in reply to Priss69

Oh, that's strange. I don't know why that is.

Priss69 profile image
Priss69 in reply to PlanetaryKim

I will try to copy the form that you have put in my post and if you let me

PlanetaryKim profile image
PlanetaryKim in reply to Priss69

By all means!But you need the full URL that you see when you click on the link I left.

Justasheet1 profile image
Justasheet1

Well done!

Priss69 profile image
Priss69 in reply to Justasheet1

I got it hahahahaha

Justasheet1 profile image
Justasheet1 in reply to Priss69

No really, no joke. What you did is wonderful and so needed.

Priss69 profile image
Priss69 in reply to Justasheet1

I think it was necessary. We are few and doctors can not make statistics because they do not have many cases. I hope that in this way I can obtain information and in that way do studies. It is important at what time the transformation occurred. I am convinced that if it is detected in the beginning it can be cured.

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