Breast Cancer/CLL: I thought I would give you an... - CLL Support

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Breast Cancer/CLL

migirlusa profile image
15 Replies

I thought I would give you an update. In December they removed the tumor with clear margins and clear lymph nodes. I was so excited until they told me I’m triple negative. This means there is a high probability the cancer will return. I will have to go through 4 rounds of chemo 3 weeks apart then radiation.

Dr. Choi told me to stop the Imbruvica the day before treatment. He also said the up side may be that the chemo may suppress the CLL for sometime. However I am unmutated so who knows.

I’m waiting to get the call to start treatment. One more hill to climb!

Pam

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migirlusa profile image
migirlusa
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15 Replies
Panz profile image
Panz

God Bless you !!! Thanks for the update and sharing what is going on...we all are able to learn from each other. Please know that our community is here for you and we are very much In your corner. All the very best!!!

Panz 🙏☘️💕😍

maggiesgrandmom profile image
maggiesgrandmom

HI Migirl, I am so glad they got it all out. Please try not to worry about something that may not happen. I know that is so hard to do, maybe impossible. But know that everyone reading your post cares about you. Praying that you get through your treatments and you never hear the word breast cancer again! CLL is enough!

cllady01 profile image
cllady01Former Volunteer

migirlusa, So sorry for the need for the chemo and radiation, but I'd hang on to the hope the Dr. has given as a possibility that the chemo can work to keep the CLL at bay.

Please know we are with you and holding you as you go through this.

Fiona2014 profile image
Fiona2014

Good news regarding clear margins and lymph nodes. I recently experienced breast ca as well. Elected lumpectomy followed by radiation. As my tumor was hormone positive- presently on letrozole. Your specialist was right- radiation impacted my ALC and WBC - reduced to normal readings. To note, I did not under take chemo at this time. Unfortunately, my ALC and WBC doubled during the proceeding year. Recently initiated FCR- had to stop after 2 cycles due to side effects. However, recently seen specialist- no evidence of enlarged lymph nodes and ALC at 1.1

migirlusa profile image
migirlusa in reply toFiona2014

Good luck to you. Being triple negative threw me into this crappie situation.

Fiona2014 profile image
Fiona2014 in reply tomigirlusa

This whole cancer thing is pretty crappy. I was just getting sort of centred (with CLL status) when all of a sudden breast cancer detected. I guess this really speaks to being cognizant of both mind and body.

Best of luck on you life journey!

Wroxham profile image
Wroxham in reply tomigirlusa

Hope all treatment goes well for you .Some of us often wonder so it was lovely to read your update.

Blessings are sent.

Sue

Kokobean profile image
Kokobean

I wish you all the best as you climb that hill!🙏

Corkyrissa profile image
Corkyrissa

Good luck to you. God Bless😘🙏🏻❤️

Smakwater profile image
Smakwater

Pam,

You are one strong migirlusa.

I am humbled and inspired.

Stay the course and reap the benefit of your efforts.

JM

edelweiss profile image
edelweiss

Hi Pam,

My heart goes out to you. It is so upsetting to be diagnosed with a secondary cancer. This past summer, I was diagnosed with mixed invasive ductal and lobular breast cancer and CLL in my left breast. I had a mastectomy at Sloan (MSKCC) in August and needed a further resection 2 weeks later to get clear margins. Chemo started in September (CMF) Q 2wks x 8 cycles. I had my last chemo the week of Christmas. Try to take it a day at a time. I am learning to deal with what is front and center at the moment. I am wishing you well to get through this treatment. Let us know how you are doing.

Edelweiss

migirlusa profile image
migirlusa in reply toedelweiss

Thank you so much. I’m sorry you’ve had to deal with all of this. I’m starting chemo the last week of January. I’m ready!

migirlusa profile image
migirlusa in reply toedelweiss

How are you doing? I’m sorry I haven’t kept up but I would love to hear how you are doing.

Pam

Justasheet1 profile image
Justasheet1 in reply tomigirlusa

Pam,

And the rest of us also want to know how you are doing also.

Jeff

migirlusa profile image
migirlusa in reply toedelweiss

edelweiss - how have you been? I’ve been remiss in keeping up with everyone.

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