Well, my hubby didn't tolerate the Imbruvica after all. He was on the 420 dose for over a month, and the results looked very promising. But then he just got depressed, feeling just awful, like having the flu, but no huge apparent-to-others symptoms, but generally feeling poisoned. He was put on the 280mg, but didn't fare much better. He's waiting now for his doc to return from vacation. Another week to see what the new plan of action will be. His lymph nodes start to swell in his neck, like he has the mumps, and get painful, so he'll take an Imbruvica now and then, which of course is not the way one is suppose to do the treatment. He took some 5 days, felt poisoned again, and quit. It's encouraging to read other post that other drugs are available. I guess we're just reaching out. Like others have said, sometimes you just need someone to talk to. This disease has taken us on a detour in life we really didn't want of course. But dealing with it. We had to . In 2016 when he was jaundiced and hemoglobin of 2.7, our self diagnosis made us blind to what was really going on. So really some of the worst we did deal with. Sometimes you look back and wonder how you made it. But we're plugging away and life is pretty good.
Can't tolerate Imbruvica, what's next? - CLL Support Assoc...
CLL Support Association
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