Feeling so encouraged by all of the new information I've learned. Please view the recent Patient Power symposium on their website. Riveting interviews with Dr. Jeff Sharman, Dr. Michael Choi, Dr. Jeffrey Menashe and a guest video with Dr. David Maloney regarding CAR-T cell therapy. patientpower.info/video/mak... You'll even see a short interview with several patients, including me, next there is another interview with another patient and me, questions and answers from the doctors and Andrew Schorr from Patient Power, who along with his wife Esther and daughter Ruthie (and a fabulous staff) does an amazing job behind the scenes as well as bringing us powerful information for self-advocating. patientpower.info/video/mak...
We have received our facilitator training from the CLL Society at UC Irvine and are in the process of securing a meeting place to begin our new support group in Portland. It was nothing less than empowering to sit in a room with 50 other patients at the LA meeting, so encouraging hearing the stories of progress and survival and learn more about the new trials underway.
Constant good wishes to all of you for a healthy day!
Off ibrutinib x 2 weeks, a novel ultra low dose triple therapy for CLL and Richter's and CLL Society recognized for its reliable robust info
Triplet Regimen Shows Promise in CLL -Zanubrutinib, obinutuzumab, & venetoclax combo achieves rapid undetectable MRD -MedPageToday -07/07/20
