The future is looking brighter for untreated C... - CLL Support

CLL Support

23,337 members40,043 posts

The future is looking brighter for untreated CLL patients.

5 Replies

Non chemo therapies for untreated CLL begin to gain approval.

For those of us on Watch and Wait, the future is looking bright recent trials in the UK Clarity and Flair with Ventalax in combination with other targeted therapies have shown very promising results. Only time will tell as CLL progresses so slowly but I hope and pray this turns towards a cure in the next 5 years

cancerletter.com/articles/2...

Read more about...
5 Replies
Kwenda profile image
Kwenda

In the UK the next hurdle will be getting this past NICE, and the NHS to agree to pay for these treatments..

Ibrutinib was held up for a while due to costs, do we yet know costs for Venetoclax.?

Dick

in reply toKwenda

These treatments are showing deep long term remission. The cost of chemo v’s targeted will be a big factor in the cost justification. Also Chemo brings untold risks of other health issues and long term costs. I don’t think NICE will ignore them. In fact NICE has already been asked to produce a study on combination therapies as soon as the manufacturers request a European license. Now the FDA has approved I can’t see this taking much longer. If you can afford it, you could get these treatments privately.

Kwenda profile image
Kwenda in reply to

I would agree.. If FCR produces other unpleasant side effects such as the often untreatable peripheral neuropathy, then these new drugs have to be cost effective versus repeated hospital visits.

The future is most certainly dramatically brighter than when I was first diagnosed.

I just hope that the bureaucrats do not slow down the rapid approvals.

Dick

Sushibruno profile image
Sushibruno

I ECHO YOUR LAST SENTENCE!👍👍

Name-1 profile image
Name-1

In Serbia have not soon...

Not what you're looking for?

You may also like...

Survey for CLL patients having taken Venetoclax or Acalabrutinib

CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies,...

Is there a video regarding remission for CLL?

Hello, Is there a video regarding remission for CLL? I am interested in knowing what remission is...
Lavinia-Blue profile image

Support for CLL Patients

This HU site, where we share information, experiences and friendship is a massive support for many...
Jm954 profile image
Administrator

Looking for CLL Specialist

I am a new CLL diagnosis. I have been told by others with CLL that I must have a CLL specialist as...
farkmark profile image

OncLive 9 CLL Videos - Optimizing the Treatment of CLL With Novel Therapies and more Take-home messages from ASH 2021

The OncLive Chronic Lymphocytic Leukemia condition center page is a comprehensive resource for...
lankisterguy profile image
Volunteer