Anyone out there with this combination! - CLL Support

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Anyone out there with this combination!

newrider profile image
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I've had CLL for 6 years and been on Ibrutinib successfully for 3. However I was diagnosed with Liomyosarcoma in December last year and am currently being treated with Doxirubacin and Olaratumab. I am told there is no link between these 2 diseases as yet. Anyone else out there with this combination?

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newrider
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

I had a soft tissue sarcoma, that was biopsied as DLBCL.. or a Richter's transformation. My treatment included Doxorubicin... 💉 the red devil.

Did they preform a biopsy, to rule out Richter's?

~chris 🇨🇦

newrider profile image
newrider in reply to Cllcanada

Hi Chris. I had a liver biopsy which confirmed that the tumour had spread to my liver. My haematologist was satisfied that it was not Richter's, which I had been anticipating. I am on my third cycle of treatment and a CT scan to follow to check if it is having any impact. How are you now? Colin.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to newrider

I have adenocarcinoma in my liver stage four...Treated it once, and lucky I'm still here... FOLFIRI and Bev ( I call it Full Fury , but not sure who Bev is...chemo groupie perhaps? ) makes FCR look like chicken soup... 😃

Lungs full of fungi now..which puts the brakes on all future treatments for CLL as well...

~chris 🇨🇦

livinglifewell profile image
livinglifewell in reply to Cllcanada

Sorry to hear about the fungi, that is hard to work through.

newrider profile image
newrider in reply to Cllcanada

Sorry to hear this Chris. Google luck and keep up the fight. Colin

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