-Restful 6 hour sleep (no meds to sleep required).
-BP and temp normal
-no nausea or vomiting no meds required
-hungry as a bear
One more session of B later today and that’s it for a month. Weekly blood tests now. Another CT scan in the future but not sure if that’s soon or after another month or two. So far so good! Feeling fortunate with lack of chemo symptoms
and living where I do. (Alberta Canada).
Onward and Upwards!
Hi. Glad to hear things are going ok. I had 4 cycles of B & R a couple of years back. Best wishes.
Thank you! I am scheduled in for 6 sessions but I’m hoping that I won’t need that many.
I scene a few folks here say they didn’t need all the treatments in the end.
Indeed after four cycles the team were happy with my blood count so ceased treatment. I have catalogued my journey on this site warts & all good times & bad. Feel free to browse, Hope it helps.
Hello jacksco06
Curious to know at what levels of ALC your team decided to cease the BR cycles?
Hi not really up to speed with all the numbers. Had the cycles Haemotologist ceased treatment. Then spent seven weeks in hospital with numerous ailments. The details are on this site on my blog.
After which cycle are you being retested? 🙏
I have blood test once a week after chemo week prior to cycle 2, I know there’s another CT scan planned and I thought I heard that it would be before cycle 2. Just not sure on that. I have Hem/Onc appt prior to cycle 2 so I’ll ask then.
Sorry if you have mentioned this already but do you know your FISH results and was IGHV tested?
Those are routine blood tests for chemo. I am talking about FISH/Flow etc. I would think it would be after 3rd cycle unless blood work is drastically improved and nodes completely gone. Mine was 5 weeks after 3 rd cycle. My oncologist wanted the 3rd round of chemo to have time to do it's job. 🙏💕
Hi Estate1
I just completed my third cycle of B+R as you know. I am 13q deleted and un-mutated. Doctor have done three FISH tests on me over the course of my CLL progression. Last test was right before I started B+R to make sure I was not 17p, which would mean that I should not have B+R. I am now doing blood work up every week as well to determine if I will need to finish cycles 4, 5 and 6 of B+R. My blood work up is great, but it becomes a fine line between making sure the B+R has knocked the CLL down enough without dropping hemoglobin, neutrophils and platelets to much. God bless you.
Thanks for that info Dee. My Hem/Onc is keeping the Science simple for me. The P53 neg was good news re: my prognosis. (Newbie talk here haha). Having had a second opinion from the Cross Cancer Center in Edmonton AB (affiliated with my local Central AlbertaCancer Center where my Dr works) was reassuring on the lymph biopsy that was done. Having had my first chemo sessions this week all is getting VERY real. I appreciate the kind folks on this Forum and I’m gaining confidence through education. The long and winding road that is CLL. Blessings!
After 1st cycle my ALC fall from 192 to 4.2. I am afraid if I take 2 cycle ALC levels may further dropdown ? Your experience ?
Yes, I followed about the same pattern. Dropped from 197 to 6.2 in 26 days after first cycle of B+R. Second cycle up to 13+, then down to 6.2 third cycle. What you want to watch is your hemoglobin, neutrophils and platelets. My hemoglobin was down to 9.0 after first cycle, if it had dropped to 7.0 I would have to have transfusions. I was given Neulasta to boost my white cells up. I am now having weekly CBC panel blood test to monitor my hemoglobin, neutrophils and platelets levels. I saw doctor today and it looks like I will have 4th cycle of B+R next week because I am responding well to treatment and what few side effects I had have now subsided.
Hi Jacksc06
You mean that you finished with 4 cycles of BR ? How many yrs of remission ?
Anyone on Eliquis and ibrutinib, or other CLL med?
Secondary BR Treatment
Received My Evusheld Injections This Week
Hospital response to lack of monitoring after first FCR
