Protein Shake: Hi guys, can someone with sll or... - CLL Support

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Protein Shake

krikri1989ho profile image
26 Replies

Hi guys, can someone with sll or cll have protein shake during workouts?

Thank you !

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krikri1989ho profile image
krikri1989ho
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26 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Depends what's in it I suppose...

~chris

Keepkicking profile image
Keepkicking

I've never seen any contraindications to supplementing with protein with CLL. Are you looking to gain muscle? Because, generally, you would ingest protein in the 45 minute window AFTER working out to benefit the most.

cajunjeff profile image
cajunjeff

I am not aware of any diet restrictions at all for just Cll. We are encouraged to eat healthy, but so is everyone else.

There are foods to be avoided with certain treatment protocols. But if you are not in treatment, I can’t think of any food we can’t eat. Could be wrong. I do know if we become neutroponic, there is a certain diet recommended for that.

TimHB profile image
TimHB

I'm on ibrutinib and I make a daily morning smoothie with the full approval of my doctors: whole-milk yogurt, acai powder, banana, peach, strawberries, pomegranate juice (controversial, but approved). I either accompany this with an egg or toss a raw egg into it (risky, I know!) for added protein. If I don't eat well or have much appetite for the rest of the day, at least I know I'm getting the basics covered.

PlanetaryKim profile image
PlanetaryKim in reply toTimHB

Interesting about the pomegranate juice. I thought it was on the no-fly list when on ibrutinib because it seems to be a potent cyp3a4 inhibitor: ncbi.nlm.nih.gov/pubmed/156...

But these findings of cyp3a4 interactions are often contradictory. i was searching high & low to determine if curcumin supplements were a problem with ibrutinib in terms of cyp3a4 interactions. asked a pharmacist who spent a lot of time online researching it for me. and there were studies saying it was an inhibitor, and other studies saying it was an inducer, and other studies saying no effect in living human. (because some studies are in vitro, some studies are rat studies, etc., and results don't always correlate to actual response in human body).

TimHB profile image
TimHB in reply toPlanetaryKim

I know what you mean about pomegranate juice. Everyone here jumps all over me about it and lumps it in with grapefruit and seville oranges but my docs insist it's OK.

livinglifewell profile image
livinglifewell in reply toPlanetaryKim

I always speak to the pharmacist at Biologics who is the maker of my ibrutinib about supplements and interactions. They are incredibly helpful.

PlanetaryKim profile image
PlanetaryKim in reply toTimHB

I am having my morning smoothie right now of banana, raspberries, organic whole-milk yogurt, organic OJ, collagen powder, camu powder, organic gut superfood probiotic powder , chia seeds, shredded coconut, and cashews. :)

Pippasue profile image
Pippasue in reply toTimHB

Why is pomegranate juice controversial? I do cranberry in my smoothie so just wondering.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply toPippasue

Must interact with cytochrome P450 superfamily of enzymes. Many drugs do this as does some fruits ... they can reduce or induce drug availability.

~chris

Pippasue profile image
Pippasue in reply toCllcanada

I don’t understand what that means. Should I be avoiding certain fruits or juices then? Anything else? TIA.

AussieNeil profile image
AussieNeilPartnerAdministrator in reply toPippasue

If you are prescribed certain drugs (and about 50% of drugs may be impacted), then you may need to avoid certain fruits and fruit juices, because they contain an enzyme CYP3A4, that can boost or inhibit drug effectiveness. Most people are aware that grapefruit can interfere with many drugs, but the list of fruits is potentially much larger, particularly if you are consuming significant qualities, which can easily be the case if you drink the juice rather than eat the fruit. (That's why medical advice is often to eat the fruit rather than drink the juice. You get the beneficial fibre and would find it difficult to have too much fructose.)

With respect to pomegranate juice, PlanetaryKim referenced this paper above, showing why the concern:

ncbi.nlm.nih.gov/pubmed/236...

Neil

Pippasue profile image
Pippasue in reply toAussieNeil

Thank you.

Lola69 profile image
Lola69

I have 310 shakes. They curb my sweet tooth.

cajunjeff profile image
cajunjeff

I eat chocolate cookie dough shakes. I also like Oreo blizzards from DQ.

Lola69 profile image
Lola69 in reply tocajunjeff

Hmm those are not really shakes 😁thought DQ was only in Canada.

Nanno77 profile image
Nanno77 in reply tocajunjeff

Jeff...I like your style...

roszika profile image
roszika

Protein is an essential part of a diet whether you have CLL, SLL or nothing wrong with you and I am pretty sure it cannot be a bad thing to have extra protein if you work out- essentiall amino acids may in fact help from CLL becoming more aggressive- who knows!!!like chicken soup- it cannot hurt

JustAGuy profile image
JustAGuy

My non-professional understanding is after workout, need some protein or fat within 30 min or will loose body mass. As for powdered protein products, I have one based on caprotein from goat milk, I do not use it regularly. Know what the protein source is in your powder and look it up to decide if you want it in your diet or not.

thompsonellen profile image
thompsonellen

I think the trick is not to overdue it. I started working with a trainer who was into really high protein intake and I was using protein shakes. I think it really raised by uric acid. I had joint pain. Obviously I stopped.

CLLAdvocate profile image
CLLAdvocate

The only thing I would add is avoid using commercially made protein powders in your protein shakes as many contain heavy metals. Use whole foods whenever possible and avoid extra sugars 😊.

Canuck901 profile image
Canuck901

Limiting dairy is a good idea , substitute with an almond or cashew nut milk that’s carrageenan free

Astonmartin profile image
Astonmartin

We are supposed to get about 50g of protein daily.

Choose a powder protein with less or 0 sugar.

The body can use protein to produce glucose. Body does not need sugar.I take protein after exercise 25 g one scoop with almond milk. It helps your hemoglobin and mine has been very stable since I was diagnosed with CLL about 3 years ago.

Run it by your doctor as well so you have his buying.

Farrpottery profile image
Farrpottery

Absolutely!!

My husband lived off of Arbonne protein shakes during his first couple of years after diagnosis.

Arbonne is pea, rice and cranberry protein. All vegan, non gmo and no soy or dairy.

We made him a recovery shake with almond milk, bananas, strawberries and blueberries and ice. He didn’t have much taste for hot food. These shakes soothed his stomach and eased his acid reflux.

Google Arbonne.com

You can get them from most countries;

USA, Canada, several more.

These shakes saved him nutritionally during rounds of chemo prior to him beginning Ibrutinib. He still loves them and they’re a go to around our house.

Blessings

Farrpottery

Farrpottery profile image
Farrpottery in reply toFarrpottery

Oh and no sugar just stevia

livinglifewell profile image
livinglifewell

When I've needed to supplement my diet with protein I've used a product Spirutein - a powdered mix that can be blended with water/juice/milk/ice/ice cream/fruit. It provides 30% of one's daily protein need and comes in a variety of flavors. I get it at the local health food store. Its protein source is spirulina. There are a lot of additional nutrients involved as well. I've never had any ill effects from the product and have used it off and on for the thirteen years I've been "ill."

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