Anyone have any experience with Rebounding? I've read that it's one of the few exercises that can, scientifically-speaking, help drain lymph nodes. I've been able to bring down lymph nodes in my neck 50% or more just using hot/cold compresses and now hot/cold shower massages, but my lower tonsils are still swollen to the point that I lost the upper register of my speaking/singing voice. I have no pain or discomfort but my ENT has confirmed they are swollen and that that must be causing the loss of register. Anyway, thoughts about rebounding? Thanks
John W
Yonkers, NY
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jawdfs
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I'm unaware of any data on rebounding in CLL, other than CLL tends to rebound after treatment at some point...🥴
CLL B cells tend to be well cared for in the pseudo follicular centers in the nodes and tend to move on chemical signals, not gravity...
The exercise may be of benefit generally, but I had a friend that tried it back in 2002, when it was a fad and on the second day hit the spring padding , fell off and broke her hip...
Dr. Susan LeClair in one of her many videos on Patient Power talks about how you can change your WBC by vigorous activity like running up and down stairs or anything that will cause white blood cells to be dislodged from collecting on the walls of your arteries.
We only count the circulating cells. But if you want to, you can knock the marginating cells off the walls, and that's not as hard as it sounds. You want to raise your white count, you want to raise your granulocytes, run up the stairs before you have your blood drawn. You want to be stressed before you have a blood tests. It's going to raise your white count. You do any exercise, it's going to raise your blood count.
When—as any woman who's ever had a child will tell you—labor tends to be strenuous exercise, and every woman for 24 hours after delivery of a baby is going to have a white count that's 20,000 or maybe 25 because all of those marginating cells have fallen off. It's going to take them about 24 to 36 hours. They'll all go back onto the walls of the vessel again, so your white count drops.
So sometimes changes in white counts just happen because you had a fever. You were afraid, so it's an adrenalin rush. You ran up the stairs because you were late. You had some sort of trauma or bruise, and all of that is going shake those marginating cells off into the peripheral blood. And it really doesn't mean anything.
When you look at the marginating cells, they're functional cells. They're just as good as the ones in the center of the circulation. It's just that it's easier for them to be up against the walls because they're going to do their work outside of the blood vessels in the tissues. So they're just hanging around those walls waiting for something to happen.
So my guess would be that you can cause your WBC to increase if you were to jump on a trampoline before the blood draw, but the change would be temporary and not anything useful for treatment. THAT IS JUST A GUESS
"So they're just hanging around those walls waiting for something to happen." Brings up the image of bats hanging upside down in doorways or on tree limbs.
That is an interesting read and good to know, Len. Thanks.
Yes, I love my rebounder, I use it every day - 4 - 6 times a day, it is a great way to exercise and detoxify the lymphatic system, also good for bones, which I needed after my treatment. Luckily a friend had one, which he didn`t use, so he donated it to me (lucky me) Gentle exercise is good, I also walk and do yoga.
I do rebounding on a mini-trampoline, and love it. Been doing it for about 7 months, for about 10 minutes daily and I lift hand weights. I figure it moves the lymph, easy on joints, and helps with bone density. I also do intermittent fasting. I'm starting with green tea - which is supposed to shrink lymph node size. I'm a singer too - and have temporarily lost my voice range due to lymphnodes swelling, chronic sinus infections causing lymph nodes to swell prior to my official diagnosis of CLL. I've realized that need to do nasal rinses, flonase, and zyrtec to stay ahead of congestion and I feel the rebounding and fasting helps with that. I'm stage 0, but my white blood cell / granulocytes numbers were higher when I was diagnosed, compared to blood tests this week.
I'm saving money to get a cellerciser with a bar to hold on to. I've researched and analyzed the options, and feel this kind would be the most stable in the long run. I live in a climate that gets icy for 5 months out of the year, and figure this will be best for my joint/bone health. I come from the land of broken hips due ice slipping.
Thanks so much for your response - we share a lot in common. I've also been CLL W&W for 4 years but have had a series of weird and serious issues. just the past year I lost my upper vocal register for a month. Had fluid in the eustachian tubes (I'm a musician, btw), a serious sinus infections that required hospitalization. A second sinus infection and now an acute drug-induced reaction to Valtrex. I'm in the hospital at the moment with platetels at 7 (they were 1 when I entered). But I see a lot of your protocols are similar to mine except when I feel great I tend to get lax. Even though I really try to eat whole, pure, organic, I get lazy and give in to GF baked goods at times, even a little too much good dark chocolate. But I do need to add more exercise. I do yoga and have the rebounder but stopped using it after only a week when my main hematologist said it could cause problems as much as solve them. Now, I want to re-think. Thanks again!
There's a method on the rebounder called the "health bounce". It's a simple, slow technique of just moving up and down just to open the lymph flow. It's kinda Like slightly bouncing. That should give you circulation with out overwhelming your system.
My food addictions are gf baked goods and chocolate too! I think of it as an addiction and try to control intake.. that sugar causes inflammation, congestion, and wrecks the gut bacteria. I take tumeric each day too, increased the cruciferous and allium veggies. I watch nutrition facts.org videos on my health topics.
Hey there! So helpful! thank you Had some good news today - the "mass" that they found in my liver a couple days ago is a "benign" tumor! platelets still at 8 but very hopeful as they have held steady for 5 days.
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Had some good news today - the "mass" that they found in my liver a couple days ago is a "benign" tumor! platelets still at 8 but very hopeful as they have held steady for 5 days.
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