Kansas City Area Support Group: Good morning All... - CLL Support

CLL Support

23,257 members39,957 posts

Kansas City Area Support Group

BlueGillfisherman profile image

Good morning All:

I have been working with Patricia Koffman, Executive Director

CLL Society to try to start a CLL Support group in Kansas City Area. There are several members here who have joined with me in this effort.

If you are interested in seeing this support group started and are in the KC area please fill out the survey at this site and also private message me so i can add you to our list to keep updated.

The survey is at

cllsociety.org/newly-formin...

go down several pages to the Kansas City Location. Any and all advice is welcome as we strive to get this much needed group off the ground

James

Written by
BlueGillfisherman profile image
BlueGillfisherman
To view profiles and participate in discussions please or .
8 Replies
MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Are you on cllforum.com/ ? I believe that there are some Kansas City people there. If not, let me know and I will post this information there.

BlueGillfisherman profile image
BlueGillfisherman in reply toMsLockYourPosts

I am not , Appreciate it if you would. Are you from around KC ? Thanks for your help

james

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer in reply toBlueGillfisherman

I'm in Southern California, but have relatives near KC and my brother used to live there. I just know the value of support groups, and like people to know if there is one near them.

Maggie-Mnayer profile image
Maggie-Mnayer

Do we have on in KC area yet? I'm sort of getting desperate to feel like someone gets it.

Maggie

BlueGillfisherman profile image
BlueGillfisherman in reply toMaggie-Mnayer

Yes we do , we meet every 2d Tuesday 6:00-7;30 at Turning Points 8900 State Line Road Suite 240. Very informal group . We have folks from all stages from watch and wait to advanced treatment. Send me your E-mail adress to jamespray@centurylink.net and I will add you to my reminder list.

in reply toBlueGillfisherman

My husband was recently diagnosed. We live in KCMO and are interested in joining the group. Please add us to the list. Thanks!!

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to

Welcome to our community! For your security/privacy just send a private message with your email contact information and don't share email addresses, phone numbers, etc in the community. I've deleted your email address from your reply.

support.healthunlocked.com/...

support.healthunlocked.com/...

Neil

Colm11 profile image
Colm11

Good job you guys I wish there was one in St. Louis

Not what you're looking for?

You may also like...

Start Up Support Groups - CLL Society

CLL Society has just sent their CLL Alert/Newsletter where they are looking for interest in...
Anastasia1 profile image

UK CLL Forum *Follow-Up Survey for UK CLL Patients regarding the support you're getting- Please complete if you can.

The UK CLL Forum is the special interest group for medical doctors in UK with an interest and...
Jm954 profile image
Administrator

New York City CLL Support Group May 20 @ 3:00 pm - 6:00 pm

New York City CLL Support Group May 20 @ 3:00 pm - 6:00 pm This “Special Session with Dr. Richard...
lankisterguy profile image
Volunteer

Cardiff Support Group Visit Research Labs.

Hi friends. It is with great personal pleasure, I report (second hand) on yesterdays visit to the...
HAIRBEAR_UK profile image
Founder Admin

CLL Support Association Cambridge CLL Meeting/conference - Sat 21st June 2014:

Sat 21st June 2014: 10.30am – 4.00pm Cambridge City Hotel 20 Downing St, Cambridge...
HAIRBEAR_UK profile image
Founder Admin

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.