Blood tests

[Poi098]

I have CLL since 2007 been on watch and wait no treatment 2 weeks ago white count uo from 9 to 14 lymphcites 9 re test today white count up to 15.1 lymphcites up to 10 urgent referral back to consultant, no other symptoms should I be worried?

[Newdawn Administrator]

I’d be jumping with relief with a tiny increase like that Poi! It’s barely significant especially with no other symptoms. An Absolute Lymphocyte Count (ALC) of 10 after 11 yrs on Watch & Wait is remarkable!

My lymphocyte level has just jumped nearly 50 points in eight weeks to 124 so I’d be delighted to swop!

Unless there’s other issues, it’s hard to know what urgency there is in being referred back to your Consultant. Consultants rarely get excited about the ALC until it’s over 30 and/or there’s other significant issues.

Good for you, your CLL sounds delightfully indolent.

Newdawn

[Poi098 in reply to Newdawn]

Sorry to hear yours is creeping up but feel a bit more relieved about your reply.

Hopefully when I get to see consultant she’s not too bothered and will just monitor.

Thank you for taking the train me to reply .

[Newdawn Administrator in reply to Poi098]

She may just want to rule out an infection Poi but in truth the increase is so small, it could even just be due to lab variations!

You must have a good Consultant, I couldn’t get back to see mine even with my increase!

Relax, you’re doing great! 😊

Newdawn

[Poi098 in reply to Newdawn]

Thank you hoping irony’s done underlying infection x

[MsLockYourPosts Passed Volunteer]

Like Newdawn, I don't understand the urgency. Numbers (ALC is the important one) under 30 can bounce around a bit. Either your doctor is looking for an infection, is very thorough, or doesn't understand CLL.Let us know how your next appointment goes. Absolutely don't let anyone push you into treatment with those numbers!

[Poi098 in reply to MsLockYourPosts]

Thank you I feel so much better about it after reading these posts. I’ll keep you all posted as to results x

[AussieNeil Partner Administrator]

How much of that WBC increase is due to other white blood cells? You may have an infection or allergic response, rather than any change in your CLL. As others have noted, your lymphocyte count change shouldn't be of concern to your specialist.

[Poi098 in reply to AussieNeil]

Thank you I feel so much better afte reading the posts I’m hoping it’s an underlay my infection then can be treated x

[Altindal22]

Hi

My blood counts for white cells and lymphocytes are like 15-17 I was told not to worry I am sure it’s nothing dodo t stress u till you know the full picture

Have a good day

[Poi098]

I am trying not too and hoping when I get to see consultant she is like the rest of my responders saying “it’s nothing to worry about” I will keep everyone posted x